Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-26-2013, 06:37 PM #1
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Hello,

So sorry that your wife has this horrible disease. I also have CRPS 2 and have be fighting with edema as well although my edema is in my thigh and knee. I haven't yet found anything to take it completely away but here is what I find that works to reduce it some and keep it from getting worse.

1. Epsom salt soaks - sometimes I do this a 2-3 times per day.

2. compression stockings - the only way I can put these on due to the sensitivity is to use the lidoderm patches or voltaren cream first before putting them on. Once they are on it doesn't seem to flare the pain any more than it was before putting them on.

3. KT tape - taped by someone familiar with CRPS and the sympathetic nervous system. My therapist tapes to help reduce inflammation known as the 'spider method'. Again it does hurt a little more while it's being put on but, once it is on it doesn't seem to be any worse than normal and it does help a ton with the inflammation and the jiggle pain caused by the extra fluid. I take it off very gently after about 4-5 days while in the shower or bath.

4. Massage therapy on the unaffected body parts will also help with healing and blood flow and general body aches.

I do hope maybe something will help your wife as it has for me.

Never give up!
Tessa
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Old 06-26-2013, 10:45 PM #2
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Hello NGU,

Thanks for trying to find help for your wife. She's lucky to have you.

Please take those leopard print slippers away from her....they look too tight !

She should elevate that leg as much as she can, preferably above the level of her heart so resting in that new bed is a good idea). If she can tolerate massage to the area, gently work lotion from her feet up the leg toward her knee in long flowing strokes to try to increase the return circulation upwards. It can sound counterintuitive, but drinking enough water is also important in helping her heart get that pooled fluid back into the circulatory system to get it out of that area.
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