Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-30-2013, 03:52 AM #4
finz finz is offline
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finz finz is offline
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Join Date: Feb 2007
Posts: 1,804
15 yr Member
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I take Neurontin 1200 mg twice a day, for quite a while now.

When I started on it and was titrating up on the dose, it did make me very drowsy, so most of my dose was scheduled at bedtime (600 mg every morning, 1800 mg every evening) I took it that way for a few years, then found that it woke me up and gave me a bit (it's all relative ) of energy, so I go with 1200 mg twice a day, breakfast and dinner. That's a convenient time for my doses because I have to take Metformin then too. Since I started Neurontin, I gained weight (I was already a big girl, but got bigger) and developed type 2 diabetes. As I just confessed, I am a big girl, definitely pretty sedentary for years with pain issues, and I do have a family history of type 2 diabetes, but the family members were all in their 70's when they developed diabetes.....I thought I had 30 years before it got" me. No such luck. Neurontin is known to cause increased blood sugars. Since being dx'd, I've done my own little science experiments too when I tried getting off Neurontin to try Lyrica. Bloodsugars were better without either drug, both Neurontin and Lyrica increased my bs's.

Okay, enough side effects ranting. For what it does to help with the pain, it's worth it.

After titrating up to this dose, being on it for awhile, going off it to try Lyrica, same effects/cheaper price, back to Neurontin, back to this dose..... It's been a good 5 years since then and I'm still at the same dose and it's still doing it's job. I haven't needed an increase in dose. My disclaimer is that I am also on Cymbalta and narcotics, Neurontin is only one piece of my pain med regime.....and I am not able to work.

For me, getting to the RIGHT dose of Neurontin was key at the start and I haven't had to worry about increases since then. Good luck !
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