Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 07-21-2013, 12:20 PM #1
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Quote:
Originally Posted by Brambledog View Post
I agree!

If we could get some clever bonce to invent it we would ALL buy the stuff......sad but true

I'm sorry you are having such a nightmare with this cozyc, I hope today is a better day. I think we all deal with the phase of hope where you think there's a chance it will just 'go' (in my defence, my first pain doc told me that 'if i did what i was told it WOULD go, and it was up to me. Unbefrigginglievable.) or that the diagnosis is wrong and you have something much much easier to deal with - but that rarely happens, and unfortunately you do need to accept that you have it and try to deal with the symptoms and changes to your life.

I say that, but I'm still struggling with it myself at times, I suspect I always will. This damn disease can catch you out at any time, any place, and just as you think you are dealing with it, it changes and catches you out. But you have to keep fighting it and garnering pearls of wisdom from the good folk on here - I'd be far worse off if I had to only rely on the doctors for help and advice!

I wish you luck and lessening pain. I hope things get easier.

Bram
Amen to that Bram! This damn disease is so unpredictable!
And you're right we are all better off with the wisdom gained from each other.
I've tried many treatments and will probably try more.
I can usually tell the "sales" tactic behind some of the treatments offered at Dr. offices. But here it's so much better to get a "reality check" on actual experiences of others and that's another way we learn from each other.
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