Been quite a while since I've been on here! Background- 2007 TKR went bad, resulted in RSD in knee. Early 2008, diagonsed with Multiple Sclerosis and Ankylosing Spondylitis. Also have Osteoarthritis, Scoliosis, Hypothyroidism and Endometriosis. Yes, almost everything but the kitchen sink! My RSD has been confined mainly to my right leg (started in knee, then spread to leg and foot). But in the last six months, my right side of face goes bright red, swells, feels extremely tight like windburnt. My right forearm is also the same way. I am getting very nervous as the burning feeling is starting to effect my right eye. My eye burns and hurts when this acts up with is becoming more often, usually 3-4 times a week - can last over 24 hours each time. Can anyone give me your insight of RSD effecting your face as such and eye? I have had blocks done in the past for my leg which helped some but was left as that. I take Lyrica, Cymbalta and Methodone. What can they do medically for RSD effecting the face and eye? I am assuming its the RSD, but having the MS and AS, I'm not sure if these diseases can effect your face this way. I've got so much going on with my body, I did not need this to start getting worse - ugh! Thanks for listening and commenting.

Sorry about your pain. I think I have rsd in my eyes though it is hard to get a dx of it in your eyes. About 6 months after dx in my legs I developed severe eye pain,pressure,etc. Over the next year I went to 50 eye apts,10 eye specialists,many meds,tests. I also started having ear pain that would go into the eye and so much pressure. I went back to my neurologist because I have PN as well and he did an mri of brain/ear. Plus I had scans of my eye. The eye specialists did dx with bleph and dry eye but felt I should not be in the crying pain I was. The mri showed nothing. Over the years it has gotten to a better place and I am not sure from what since my rsd areas have been so bad lately. I still have pain but not to the extreme. I get flares though of worse times
As for you some meds can cause eye and facial I think problems too. Have you looked into that?Have you talked to your treating doctors since you do have other dx about this? For me I have PN and RSD so know sometimes it is hard to not what is causing what.
I wish I could offer more. Hope you can get relief

I too have RSD in my face and eyes it got so bad the swelling hemoraged in the back of my eye my mom was so scared as it looked like my eye was popping out if my face. I wish I could say there is an easy way to diagnose or treat it. I have full body RSD, sarcoidosis of the live and lungs, hypothyroidism, and thyroid cancer. The RSD in my face I treat just the same as my other rsd if it gets bad then I go to the ER. Prednisone a steroid does help when I have lots of swelling now I am on it all the time to reduce the swelling in my liver and lungs but if it gets worse then they up the dose while in the hospital as if they give it at home I have other complications. Many eye specialists arent going to be the ones to diagnose the rsd as they didnt with me in stead they thought I haed a sudo tumor of the brain where spinal fluid fills up and puts preasure on the eyes but of course that wasnt it.

Sam