Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-10-2013, 09:37 AM #3
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
Posts: 975
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How many revision surgeries have you had??

I have two SCS's (cervical & thoracic) that were implanted two years ago. I had a revision done, five months after implant, to the thoracic leads and battery because the leads migrated and the battery really hurt where is was placed in the butt/hip area. So that battery was moved to the front/side, kinda near the base of my rib cage area. I need another revision, the leads have migrated again and that same battery is twisted. I developed this awful pain in my lower back after the first surgery and it hasn't improved. Dr is baffled!

I agree that you should get a second opinion. You most certainly can get RSD/CRPS in a place other than your limbs! That tells me your dr doesn't know much about it. Mine started over 22 years ago in the right side of my face. In addition to my face, I now have it in both hands, feet, shoulders, left arm and left leg, abdomen, head and internal.

All the best,
Nanc
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