My symptoms are worsened by cold weather if I get chilled, and definitely by anything other than a gentle wind blowing on my skin. No effect by low pressure systems that I've noticed.

(CRPS type II for 8 years from venipuncure nerve injury during blood donation. Neuropathy is in entire right half of body, but stable and manageable with meds, excercise, and biofeedback.)

Here in the UK the weather has changed completley today - its 10 degrees colder, raining and grey. The previous two days ive had a rough time with symptoms and sleep, and today before even getting out of bed everything on my left side is hurting. I'm up showered and dressed but regretting every move. Can't type much today my left hand is burning up and aching in every joint.

Hate this. Why should my life change just because the barometer goes up or down??????

Hope you guys are doing ok, and thanks so much for all the responses.

Bram

Hey Bram, so sorry you’re having a tough few days hon. You are such a great gal and I sure do hate that you too have this damn thing and that it’s rearing its ugly head. Good for you that you keep trying to go through the motions of preparing for the day, even if that means that you’re all cleaned up and ready for bed.

I truly feel your pain. We’ve had clouds roll in every day for a couple of weeks in the afternoons in the mile high city and it’s just insult to injury. For like three, pushing four weeks now things have been going steadily downhill for me and this past week has been shear hell. I almost waited too long again to take Percocet last night. Good grief I get tired of crying in pain at night (only makes my head hurt), then waiting/hoping for the drugs to kick in while every inch of me is screaming. I hate the way the drugs make me feel. Sick to my stomach, wired for sound… yuck. I’m waiting for the birds to start singing to let me know that the new day has officially begun… on zero sleep… awesome. Soon I will stumble around to get my daughter off to school. I am falling SO FAR BEHIND in every aspect of my life. I need to go in and see my doc, but even that is a struggle in every way right now.

Anyway, enough about my crap, it’s the same story over and over again. I wish I had something clever and cute to say that might make you at least smile. Perhaps that will come as the day progresses I really do hope that perhaps you can find a warm blanket, and a comfortable position, and can get a little bit of rest that includes sleep.

No need to respond, I just wanted to let you know that I care, and that I so get right where you’re at… right now. Feel better quick my friend.

Vrae, you are my official sunny spot in this gloomy day thanks so much. Any time you need a chat, moan, offload, cry, pity party, etc, you can count on me. I've always got some chocolate and a bottle of wine around somewhere...

I can't believe you've been going through such an awful patch for a month - I've had a few days of it and could cheerfully take to the whisky bottle! Hang on in there chick, I really hope things get a little better for you very very quickly.

The thing really getting to me over the last week or so is the worsening of my left hand and arm. Typing is starting to really hurt, my palm and fingertips are burning, my whole arm aches with pain and is getting so clumsy - and just typing this long is getting too much. Haven't played my cello for four days and can only play the piano for five minutes at a time. To be honest I'm quite scared about how much function and strength I've lost in that arm, and if my CRPS takes away my ability to play music - my salvation on so many bad days - I might just crack up for a while.

Hey ho. I'll have to find some padded gloves for my cello and piano, might help for a while at least! Take care of yourself today and I hope tomorrow is better. Have one of those smiles on me you know you want to...well done

This has taken ages. Ouch. If only i had a drug that acutally blinkin worked. Ive given up taking them, i hate the disappointment. Thanks again. You are a friend indeed

Bram.

I have lived in 3 very different climates with RSD. Florida, California, and Michigan. I moved from MI because of the cold and going frozen but pain higher. Florida I am on fire with severe swelling where my shoe size goes up 2sizes. I also get sores. In CA I still had pain but it was the better of the weather though we still got times of hot. I still may be moving back to MI since it is my hometown. CA is too expensive. FL no way for me. I have looked into NC but I am not sure.
Really I feel every place has its pros and cons. I joke and it is not funny I just need a bubble to live in that is climate control and I don't have to worry about getting knocked into.

Hi Daniella,

Crazy, isn't it? And if you try to explain it to anyone, they look at you like you are insane....oh the joys of being so rare and special...

I've often thought there must be somewhere with a climate that really suits CRPS - but then everywhere has weather, and the more stable environments are those with extreme temperatures - either very cold or very hot. Neither any good for us!

Have a good day anyway

Bram.

I know all to well what you are referring too. I have had RSD for over 10 years now. It took some time to figure out what it was exactly, that would put me horizontal suddenly. Barometric pressure changes, specifically drops.....Are the WORST!!! I can feel great today, then a drop in pressure and a bit of moisture, and I am HIT!!! For Me, I was in a bad car accident at work, and suffered spinal cord & Ulna nerve damage. So, I also deal with a great deal of arthritis as well, which is without question affected by weather.

You're so right Cops, I deal with arthritis along with the CRPS as well, and weather is such a big part. I feel like I've fallen down some kind of long slide into The Pit the last two days....omg the pain levels have just leapt up I hate this. I've been trying to keep my activity up like I was when I was feeling better - but I just can't. My body is protesting about everything.

Oh well - it's not like we're heading into 6 months of dark, cold and dismal weather or anything lol Gotto love the UK climate. NOT.

Bram.

Bram,
It not only makes ya mad, but is really confusing!! Even if you wanted to try and suck it up...You just can't. Your body will outsmart you Every Single Time!!
Ever notice the added bonus, when the weather is about to shift? Your body naturally decides to not allow you to sleep when you feel good, heading into a downward spiral. I mean, You can take all the sleeping pills you want on your ok days to keep a schedule...Still, when you get hit with breakthrough, you are gonna be sleeping for a couple of days!! Chronic Pain is a very Lonely, Dark Existence!!.....11 years now since I got hurt, and I still don't have this figured out....Not Even Close. I cannot imagine another 30-40 years of this BS I try not to complain to bad, as I have come a LONG way, and my tolerance is pretty remarkable, given the raw damage to my body. Blessings!!!

Bram, I don't really know if the weather affects my CRPS. This weekend has been more painful but I'm not sure if that is because of the weather. I worked crazy hours this week and held my friends' baby on Friday evening. Of course, I knew I would pay a price for holding the baby but I didn't want to refuse to hold him.