Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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View Poll Results: Is your CRPS affected by the weather?
Yes, for me there is a link 34 94.44%
Yes, for me there is a link
34 94.44%
No, I haven't noticed a link 2 5.56%
No, I haven't noticed a link
2 5.56%
Voters: 36. You may not vote on this poll

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Old 08-15-2013, 04:41 AM #1
Brambledog Brambledog is offline
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Default Is your CRPS affected by the weather?

PLEASE VOTE IF YOU LOOK AT THIS!!!!

I'm fascinated by this idea. For me the link is really clear, and a friend of mine who has CRPS too finds the same correlation between weather change and more pain. We often find our symptoms change at the same time.

I seem to find my symptoms better in settled mild weather, and generally worse in colder damper weather. If the weather is changing from say sunny to rain things feel worse - recently when we had some major changes in pressure with storms I noticed a lot more burning and pain.

When I looked on the web, I found that barometric pressure changes and symptom change have been mentioned in some conditions, including arthritis and CRPS, but I couldn't find much specific research.

Just interested in whether anyone else has noticed this?

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.

Last edited by Brambledog; 08-15-2013 at 06:30 AM. Reason: A plea for lookers to become voters!
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Old 08-15-2013, 06:52 AM #2
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Bram,

I too find my symptoms better in settled, mild weather than unsettled colder weather. No question about it......
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Old 08-15-2013, 07:29 AM #3
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Bram,
I have much more discomfort with extremes in weather temperature. If I had to take one over the other I would opt for cold because heat really amps up the burning pain in my legs and pelvice. I have not noticed the correlation with barometric pressure but will take note from here on out.
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- CRPS Type II with migraine, Dystonia and spasticity
- Diagnosis 2010 following
- Injury 2004 L5S1; 2nd metatarsal left foot fracture; left hip fracture
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Old 08-16-2013, 08:28 AM #4
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I'm sort of hugely relieved that it's not just me!! Although of course it does add a whole dimension to our lives that we can't control

I had a horrible night yesterday - it was very humid, and then we had a lot of rain. My feet, knee and then whole leg burnt up in a way they haven't for months. I checked the barometer twice yesterday and it was busy dropping down....

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 08-17-2013, 06:09 PM #5
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Just like all, it seems to be the 'changes' that hurt, although:
Barometer rising, starts to help (i.e. a storm clearing) it's still a change,

Also, I can't stand the heat and humidity, any more than I used not be able to stand the cold (still can't)....

Give me 70 degrees any day, even the daytime / nite time differences cause me pain, and it's always at it's worse in the AM. I love waking up to a new day!

Love ya'll

Pete


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Old 08-17-2013, 08:37 PM #6
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Default Absolutely

in the winter it makes my arm ache so badly. Since this is relatively new for me, I also discovered that ANY major change in temperature will make it flare. When the first heat wave of summer hit I had 2 major flares, but it seemed to calm down a little once my body got used to it.
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Old 08-18-2013, 12:23 AM #7
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Default Most Definately

The barometric pressure is an issue for me and because I live a mile above sea level even the slightest change can be felt. I started using this http://www.wunderground.com/history/...q_statename=NA Weather Underground to look at the pressure (you have to scroll way down to see it)at any given time of day to measure a correlation, and every single time there was a measureable difference in my symptoms and the drop in pressure. At the top you can chose to look at the history for any given day.

Granted the link I posted is for my area, but perhaps you can somehow use it for where you live. Not sure how I got to my particular location on that site because it was such a long tome ago that I made a permanent link on my PC. I would research it but I was just popping in for a minute. I have been feeling a little under the weather. No pun intended Having a bug on top of the CRPS is always SO MUCH FUN!
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Old 08-18-2013, 04:28 AM #8
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I have a small weather station that I got a few years before the CRPS, and for me it is fascinating to see this marker for my symptoms change.... I don't check it all the time, not even every day, but if I have a flare or just feel lousy, I can guarantee that the barometric pressure will be doing SOMETHING! It won't just be sitting there nicely at an even level for the past few days!

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 08-27-2013, 12:08 AM #9
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My RSD hates cold and hot a lot and these are obviously associated with winter and summer in a temperate climate but I don't think it's the weather per se that causes the trouble.

I have stress worrying about the onset of winter but otherwise I don't think the weather affects me.
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Old 08-27-2013, 08:43 AM #10
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Yes, in my wife's case, profoundly.
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