OMG I can't stand this pain, as of late!! I called my PD and his sec. told me to wait until I get my third shot, and the steroid in the shot along with the other medications in the ganglion nerve block shot should help.) when my PD gives me the shots, he just says "Hi, ok, pinch(from the needle) then after he is done, he leaves!! Im just having a really, really awful day today. I hate this pain!! thanks for the vent guys! Love, Desi

Desi,

Hi,
My name is Sue and I am new to this site. Iam sorry for the pain. The bad days can be so long when you have RSD. It angers me when a Dr. has no compassion for us. Just a few kind words, a little time, anything would help. I've seen so many of the Dr.'s at the pain clinic, they don't even know who I am or how I feel. Thank god there are people here that understand and its sad but we all have our bad days. Talking to someone who knows and just venting can be the best medicne. I hope you have a better day.

God Bless
Sue

Desi,

I am so sorry to hear that you are having such a bad day... I hope that the steroid kicks in soon and your pain levels go down quickly...

Many Gentle Hugs to you..
Dawn

hey desi. it sucks not being understood. i just posted about getting thrush from my shots so i didn't get to have my 3rd today. try and find comfort here in this forum. i know that none of my friends or family members understand me and it's hard to find compassion. i mean TRUE compassion. sympathy is one thing but empathy is quite another. at least here, people actually KNOW firsthand how you feel.

shalom,
ang

Thank you Sue, Dawn and Ang.. and Sue, your right these doctors have no idea how we are feeling and hurting. By the way, welcome, Sue!! I am fairly new here too. I find hope, inspiration and gentle ((hugs)) here. thank you Dawn for the hugs.. I really neded that. Ang.. your right about no compassion from our dr.'s some of them are just down right rude!! My grand children 2yrs. and 4 1/2 yrs. came to visit this afternoon. It's sad when I have to put "that smile" on my face and gently tell them,;"Oh [please, baby.. don't touch Na-Na there) I ended up going up to my bedroom after they left and busted out crying. I took a percocett pain pill after they left. It takes some of the edge off, but darn, darn, darn.. I hate this!! I can't wait to take my 200 mg. of gabapentin before bed tonight, as that knocks me out. Thanks again all. Your "ALL" the best! Love, Desi

hi desi,
sorry the shots are not working as well as hoped for. i think you should push for something for breakthrough pain. have you tried ibuprofen? it works very well for me. i take 800mg. also to apply heat and elecate the areas when you can.
joan

desi, the ideal amount of neurontin for rsd is 400mg three times a day. ask the doc to up that for you it might help. joan