OMG I can't stand this pain, as of late!! I called my PD and his sec. told me to wait until I get my third shot, and the steroid in the shot along with the other medications in the ganglion nerve block shot should help.) when my PD gives me the shots, he just says "Hi, ok, pinch(from the needle) then after he is done, he leaves!! Im just having a really, really awful day today. I hate this pain!! thanks for the vent guys! Love, Desi

Desi,

Hi,
My name is Sue and I am new to this site. Iam sorry for the pain. The bad days can be so long when you have RSD. It angers me when a Dr. has no compassion for us. Just a few kind words, a little time, anything would help. I've seen so many of the Dr.'s at the pain clinic, they don't even know who I am or how I feel. Thank god there are people here that understand and its sad but we all have our bad days. Talking to someone who knows and just venting can be the best medicne. I hope you have a better day.

God Bless
Sue

Desi,

I am so sorry to hear that you are having such a bad day... I hope that the steroid kicks in soon and your pain levels go down quickly...

Many Gentle Hugs to you..
Dawn

hey desi. it sucks not being understood. i just posted about getting thrush from my shots so i didn't get to have my 3rd today. try and find comfort here in this forum. i know that none of my friends or family members understand me and it's hard to find compassion. i mean TRUE compassion. sympathy is one thing but empathy is quite another. at least here, people actually KNOW firsthand how you feel.

shalom,
ang

Thank you Sue, Dawn and Ang.. and Sue, your right these doctors have no idea how we are feeling and hurting. By the way, welcome, Sue!! I am fairly new here too. I find hope, inspiration and gentle ((hugs)) here. thank you Dawn for the hugs.. I really neded that. Ang.. your right about no compassion from our dr.'s some of them are just down right rude!! My grand children 2yrs. and 4 1/2 yrs. came to visit this afternoon. It's sad when I have to put "that smile" on my face and gently tell them,;"Oh [please, baby.. don't touch Na-Na there) I ended up going up to my bedroom after they left and busted out crying. I took a percocett pain pill after they left. It takes some of the edge off, but darn, darn, darn.. I hate this!! I can't wait to take my 200 mg. of gabapentin before bed tonight, as that knocks me out. Thanks again all. Your "ALL" the best! Love, Desi

hi desi,
sorry the shots are not working as well as hoped for. i think you should push for something for breakthrough pain. have you tried ibuprofen? it works very well for me. i take 800mg. also to apply heat and elecate the areas when you can.
joan

desi, the ideal amount of neurontin for rsd is 400mg three times a day. ask the doc to up that for you it might help. joan

Hi Joan! I called my PD yesterday and told who ever was manding the phones?? and she said you already asked if you could take another one(which was 2 weeks ago) and then she said.. no. your only supposed to take 1 100 mg. of the neuroton mid morning or in the afternoon, then 200 mg. before bedtime! It was on the tip of my tongue to say:"what?? are you a doctor"?? she was really snotty when she told me this too!! what a ... well you know what!! LOL I am going to call AGAIN tomorrow and demand to speak with the doctor!! Thanks Joan!!

Hi Desi I sure hope the pain has subsided a bit.

Dr.s and their staff can sometimes be worse than having rsd itself! I was upset with my Dr. a few years ago, and told him about it at my next visit. I felt he was dismissing my pain as inconsequential. He actually had the NERVE to say "Let's get Michael (my honey) in here, I think you're being over-sensitive"!!! Well, that was the worst mistake he could have made, lol. Michael came in the room, took one look at my face, my expression as well as the tears running down, and went OFF on the jerk. I left there with new scripts, morphine included.

I have found, though, that there are many other ways to make myself feel a bit better w/o using even more drugs. My favorite "escape from the pain" involves a product put out by Village Naturals that I buy at Wal-Mart. It's called Therapy, a liquid mineral bath. There are several varieties, but of course I use the one called "aches & pains". A good soak in the tub with that added makes a world of difference! I'm sure it's mainly in my head, lol. But anything that helps is worth it's weight in gold.

Hi Desi, Make Sure You Tell The Doctor That His Staff Is Interfering With Your Communicating With Him. If He Sides With The Staff, Dump Him, And If He Sides With You, I Betyou Will Not Have Trouble Getting Through To Him Again. Many Of These People Are Just Secretaries Or Medical Assistance And Don't Have A Clue What They Are Talking About. It Is Hard Enough To Get A Doctor Who Understands Rsd Never Mind An Aide! Hang In There And Demand What You Need. You Are Your Own Best Advocate. Joan