Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-18-2013, 02:37 AM #13
ALASKA MIKE ALASKA MIKE is offline
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Join Date: Apr 2009
Location: Alaska
Posts: 158
15 yr Member
ALASKA MIKE ALASKA MIKE is offline
Member
 
Join Date: Apr 2009
Location: Alaska
Posts: 158
15 yr Member
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Is your pump a synchromed 2 infusion pump by Medtronic? What size reservoir?
Thanks for answering my questions and I really hope this works for you.

I had a feeling you were doing this out of pocket.
Mike

Quote:
Originally Posted by Djhasty View Post
The pump has to be filled to max to protect it at the lower depths. Both my husband and the HBOT treatment center contacted Medtronic, with the same response of refill every 2 weeks. It is also noted in my user guide. BTW There is an 8, 000 ft limit on the upper atmosphere too. There is not an issue when in a pressurized cabin (most commercial flights travel at 20,000-30,000 feet). I did have an issue when my daughter lived in the Colorado mountains (still does) above 8,000 and 10,000 ft. We worked it out. I stayed in her cabin at 8,7??. and drove into Telluride for visits.

Darrell is paying out of pocket for my treatments at this point. The HBOT treatments are off-label (not approved by the FDA). So, the pump refills every two weeks are also out of pocket. The cost is outrageous. Well, we will see .... I do believe my sores are starting to heal. They look better. I also feel better with my average pain level running 6.5 to 7. I did have one bad 9 day in there (still updating my diary), but the HBOT brought it right back down to a 7 the next day.
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Hoping you feel better,

ALASKA MIKE
ARACHNOIDITIS,CRPStype2/CAUSALGIA since 2004
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