Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-14-2013, 10:15 PM #1
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AllenTGamer,
I looked up Vicc via our search tool. Thank you for the tip. He has posted some very interesting information about HBOT. Often his arguments for HBOT are technically over my head but I do understand the positive points to a degree. I've been going down typically to 2 atm. This is my limit because of my Baclofen pump. Medtronic's does not recommend any deeper. My technician has played with the depth to get the best results for me but never more than the 2 atm. Each CRPS/RSD patient is different and thus theHBOT dives need to be adjusted thusly. I'll be up to 60 dives. I could argue for the 80 as well. Since I had the flare, another 20 for me would be welcome. BUT, I am wanting to get home too. I miss the place, my friends, and my dog. I will be returning to California for follow up treatments every so often. The timing is yet to be worked out. Of course it depends too on money. We'll need to save up since we used a large amount to pay for these initial dives, housing, meals, car rental, etc.

The pic of the HBOT tank you posted is quite similar to the tank I've been using. The tanks here are bigger around. They are supposed to hold two people in each. Otherwise, yep. A tube with a big metal door, port holes, and a bunch of highly technical gears, dials, buttons, and nobs. It would be nice to have a tank of my own but I certainly don't have that kind of cash to layout on one. Besides, the tanks here come complete with a highly trained individual who knows what all those dials and nobs mean and do.

Thanks Allen for your responses. I hope you are getting some insight into the HBOT process. Inside, while diving, it is peaceful and it would be a great place to meditate too.
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- CRPS Type II with migraine, Dystonia and spasticity
- Diagnosis 2010 following
- Injury 2004 L5S1; 2nd metatarsal left foot fracture; left hip fracture
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allentgamer (10-16-2013)
Old 10-14-2013, 10:34 PM #2
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AlaskaMike,
Yeah, $15k to $30k to $100k is way too much for me to afford. If I did have the money, I'm not sure where I'd put it. We live in a small condo. We'd have to rent a place to put it causing even more expense ... not to mention all the set-up including oxygen. I'm limited to 2 atm because of my Medtronic's pump. I've been going in every 2 weeks to have it filled while undergoing treatment. Medtronic recommends it be full to protect the pump. It has been a bit of an inconvenience, but I have to protect it. I can't get treated in the hospital because HBOT for CRPS is off-label. The FDA has not approved it ... Yet. This is the biggest rub. Once it does, then perhaps others in the CRPS community will be able to afford the treatments and get them in a local hospital.

Believe me, I'm really not complaining about sunny Southern California. It is that, exactly. The weather is beautiful. It has been beautiful during my 5 week stay so far. Okay, there was one 1/2 day of rain.

Thank you for your response AlaskaMike!
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Djhasty
- CRPS Type II with migraine, Dystonia and spasticity
- Diagnosis 2010 following
- Injury 2004 L5S1; 2nd metatarsal left foot fracture; left hip fracture
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ALASKA MIKE (10-15-2013), allentgamer (10-16-2013), CRPStweet (11-09-2013)
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