FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
![]() |
#11 | |||
|
||||
Member
|
Quote:
Thank you!! I took a few lessons when I was around 8 yo. I loved it back then and since have always been drawn to them. So when I was trying to find things I could do to keep my sanity during the winter months and my mind occupied.. I thought of how wonderful it would be to learn to play. My only worry is how long I could tolerate sitting to actually play. My hope is that I will lose myself enough in it that I won't think about the pain ![]() Amazing that you taught yourself!!! You must be one smart lady ![]() I love that you named your Cello "Edward" that is funny! Oh have fun at your lesson and do let me know how it goes. ![]() I think it is really important with this disease to find or create new passions so that depression and self worth doesn't get a chance to take hold! I truly appreciate all who take the time to respond. Shoot, it helps us learn a few things about each other.. a bonus! My other goal this winter is to learn sign language (Vrae inspired). I really think that will be great therapy and who knows someday it could become quite useful. Have a fantastic day Bram, Tessa |
|||
![]() |
![]() |
"Thanks for this!" says: | Brambledog (09-30-2013), RSD ME (09-30-2013) |
![]() |
#12 | ||
|
|||
Junior Member
|
Quote:
"Dog." Toto thinks she's human & chases "Emily" away! Lol. My other savior is Lidoderm patches. You have to ask your Doc. For them. They are the only patches that I could tolerate. They feel a little cool ( eeeuw) When you first put them on (for 3days) but really help pain or coldness. I also I use electric pads under my body in bed & electric blanket on top under my spread. |
||
![]() |
![]() |
![]() |
#13 | |||
|
||||
Member
|
Well, I am not as exciting as you guys are. We do not have any pets, nor can I play any instrument
![]() ![]() |
|||
![]() |
![]() |
"Thanks for this!" says: |
![]() |
#14 | |||
|
||||
Member
|
Quote:
![]() And the Lidoderm - yes, that helps me too but I am realizing more and more that the the things that help me the most doctors cannot provide. No medication or treatment can help me when I am feeling worthless or sad that all comes from things in and around my life. Even just 5 min of joy/pleasure a day does wonders for the spirit! My daily goal is to find something new to bring me joy so that the things I can longer do don't bring tears to my eyes, and the new joys remind me that I am a survivor! |
|||
![]() |
![]() |
"Thanks for this!" says: | RSD ME (09-30-2013) |
![]() |
#15 | |||
|
||||
Member
|
Quote:
![]() What is your favorite show? You know you can learn an instrument on the iPad ![]() |
|||
![]() |
![]() |
![]() |
#16 | |||
|
||||
Member
|
Quote:
![]() ![]() I have so many "favorite" shows. True Blood, Revenge, Scandal, Grey's Anatomy, How I Met Your Mother, Big Bang Theory...it goes on...I love a good comedy! |
|||
![]() |
![]() |
"Thanks for this!" says: | zookester (09-30-2013) |
![]() |
#17 | ||
|
|||
Senior Member
|
Big Bang Theory!!!!! Grays Anatomy!!!! How I Met Your Mother!!!!! YAY!!!!!
Go Nanc! ![]() You can't beat a bit of escapism......like a good film does that too. I love Lost In Translation with Bill Murray, it's set in Japan, and it really is like a different world. Plus it's about 3 hours long lol ![]() Bram.
__________________
CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
||
![]() |
![]() |
![]() |
#18 | |||
|
||||
Member
|
Quote:
I have not seen that movie, not sure why. I have seen it on the movie channels lately. I will have to watch it...I like Bill Murray. There are my favorite movies that keep coming on and my husband can't believe that I keep watching them...Return to Me, Fools Rush In, A Walk in the Clouds.... |
|||
![]() |
![]() |
"Thanks for this!" says: | Brambledog (09-30-2013) |
![]() |
#19 | ||
|
|||
Senior Member
|
Quote:
![]() |
||
![]() |
![]() |
"Thanks for this!" says: | zookester (09-30-2013) |
![]() |
#20 | |||
|
||||
Member
|
Quote:
I will try not to feel that way again.. but if I do I promise to remember and think about the encouragement you have given me today, YOUR KINDNESS is very much taken to heart. I'm so glad you joined this group - it is obvious you truly care about others! Big hugs back.. ah ha this is the best kind of HUG... they don't even hurt ![]() ![]() |
|||
![]() |
![]() |
"Thanks for this!" says: | RSD ME (09-30-2013) |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
What helps? | Peripheral Neuropathy | |||
What helps | CSF Leak | |||
I Hope This Helps Some Or Hopefully All Of You | General Health Conditions & Rare Disorders |