Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 10-01-2013, 05:18 PM #1
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Thanks everyone for your info on this question!
I'll look into those links you provided too, and also see if there are any others that can give more info on this. I hope you all have a pain and flare free night.
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Old 10-01-2013, 05:52 PM #2
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Great question Renee! I have read studies here and there stating that it is an autoimmune disorder. If it's on the internet, then it has to be true right??? Haha, sorry, I couldn't resist Seriously though, Bram is correct in the fact that so many of us do have other autoimmune issues. It has to be related. I tested negative for celiac, but am definitely gluten intolerant. I also have malabsorption problems, gastroparesis, severe deficiencies in vitamins D, B12 and potassium, interstitial cystitis and allergies galore.
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Old 10-01-2013, 07:25 PM #3
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Thanks to you too Nanc. I appreciate the update. I'm going to look into celiac too. I don't think I was ever tested for that and am not quite sure what it is. I'll have to google it. Well, thanks again and hope you have a good night.
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Old 10-01-2013, 07:55 PM #4
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Yes I do believe it is. And I have read study's to where Drs are now thinking it is aswell even though they cant prove it yet. But its why I want to try IVIG infusions before I try ketamine.
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Old 10-02-2013, 03:27 AM #5
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Quote:
Originally Posted by tos8 View Post
Yes I do believe it is. And I have read study's to where Drs are now thinking it is aswell even though they cant prove it yet. But its why I want to try IVIG infusions before I try ketamine.
Ditto, and my pain doc is putting me forward for this. She in unconvinced herself, but has passed my file on to the chap who is pioneering it. I'm not sure what to think TBH, but I'd like to hope that it just might be worth a try!

Good luck,

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

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Old 10-02-2013, 07:55 AM #6
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Huh ya learn something new each day. I don't have any autoimmune problems except allergies which give me migraines. Shoot before getting rsd I was healthy as a horse. I did everything and anything ate and drank what others couldn't. Now I have hemorrhoids and I get gastroenteritis really easily. I have been checked for most autoimmune problems that my drs and I can think of. After finding out celiacs and lupus run in my maternal family I had that checked to after fighting with them to get it done. I have been checked numerous times for rheumatoid even. I am going to have to really look more stuff up. I am still doing research about this and don't have the knowledge y'all have yet. Just give me time.
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Old 10-02-2013, 09:47 PM #7
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In Jan 2010 the IASP chnaged the definition of what is Neurological Pain and RSD/CRPS no longer falls under that catagory, of course they didn't say exactly what it is now so your guess is as good as mine but one of the things it has been acknowledged as doing is to affect the auto-immune system
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Old 10-02-2013, 10:43 PM #8
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Quote:
Originally Posted by Kevscar View Post
In Jan 2010 the IASP chnaged the definition of what is Neurological Pain and RSD/CRPS no longer falls under that catagory, of course they didn't say exactly what it is now so your guess is as good as mine but one of the things it has been acknowledged as doing is to affect the auto-immune system
Well that seems quite odd considering CRPS II is caused by a 'major' nerve injury and thus affects the nervous system = neurological??? If I understand CRPS I/RSD is exactly the same except that no known nerve injury exists.

Some things just make you go..hmmmm??
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