Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-02-2013, 12:59 PM #8
RSD ME RSD ME is offline
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RSD ME RSD ME is offline
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Quote:
Originally Posted by chaos View Post
How exactly does a flare feel? Obviously everybody is going to be different, I'm just at the beggining of this awful path.

I ask because almost two weeks ago I kind of overdid it, came home and the next day could barely move. Since then my feet have been on fire and my SI joint has been especially sore. Last night I put some capcasian cream on the feet, didn't feel it at all, but I can feel it a little this morning. I'm hoping that helps my circulation enough to stabilize the pain so I can walk. My tremors also started up again about a week ago, then got worse after having to take DH to the ER. Between the overdoing it and stress I'm a shaky bag of pain.

What else might the flares include? Is it just increase in pain and the symptoms I currently have?
Flares are different for everyone, and mine vary too, but I'll try to describe the best way I can what they felt like to me last night.
It started with a deep aching, burning pain in my stomach which got increasingly worse over the course of a few hours. It feels like aching and burning from the inside out. Then the pain spread to the my limbs. (My arms, hands, legs and feet.) That pain feels like a deep aching cold pain in my bones and then a burning electrical like pain. That burning pain makes it so bad, that even putting a sheet on my skin hurt. It can last for me from hours to days, but "luckily" last night it was only a few hours. The meds help numb the pain. The combo of neurontin and percocet help me with that. If I didn't have those meds, I don't think I would be able to go on. My hands hurt so much that even picking up the remote for my tv hurt and my feet hurt if I tried to stand. And on top of that my Fibromyalgia caused more pain too. It made all of bones hurt if the slightest pressure was applied to them. The bones in my ribcage and feet hurt the most last night because of this. And then the acid in my stomach got worse and caused burning and nausea. My rsd hand felt colder than my other hand and started spasming. It felt like everytime I typed (even though I didn't type that much ) I started getting a vibrating, burning pain that increased the more I typed and then it started cramping up and got really cold. And my fingertips hurt when they push on the keys and the mouse.
I had to stop and go lie down because of all of this. Lying down seems to help sometimes. I find too that when I'm having a less painful day, that I try to do more and then pay for it for a few days after. The pain increases ad I can barely move. Well I hope this helps and that you feel better soon so that you can enjoy your day.
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