Hi Vrae,
I'm sorry you're having so much pain and such a hard time getting your project finished. I hope you can get it done soon so that you can rest a little more. I know it's still hard to rest with kids, but at least it will give you a little more time to yourself to get some sleep. I can't sleep right now because I feel like crap. It's starting to get colder here too, but not as cold as where you are, so I'm not going to complain about it. I miss talking to you but am glad to hear from you. I hope you have a better day tomorrow and will keep you in my thoughts and prayers. You are very special. You juggle so much while in so much pain. I don't know how you do it, but admire your strength. I hope you feel better soon. And feel free to vent anytime. I understand and have had my share of venting. It helps to talk to people who understand our pain. Well, hope you can get some rest tonight. I am going to try to do the same. Take care.

I want to say "Ifeel your pain" and not have it sound sarcastic. I think it's easy for our families to forget about our disease, but we may only get small moments when it does not torture us or at least nag at us.
Bless your heart I don't how you cope with the cold weather! I know that would greatly magnify the pain. You're an inspiration for pushing through, but you need to take care of yourself.
Hang in there and thanks for sharing!

Cold weather is a darn trial, no doubt at all I feel for you with snow due, its been a lovely sunny afternoon here but as the sun goes down the chilly damp air comes straight back... snow? my leg is getting even colder at the very thought!

Hang on in there chick, you'll get through this - you need to work out your own coping strategies for getting through the day from that first stumble upright (I know that one) to the final flop into bed and trying to sleep... Just remember that you are not superwoman - well not quite - do what you can, get help with anything you can, and don't push yourself so far that you end up hurting even more. I know it's a dreadful balancing act, but don't just try to do everything no matter what....don't want you feeling any worse

Thinking of you x

Bram.