Home Menu

Site Navigation



Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

NeuroTalk Support Groups > > >

Did you know?

Reply
 
Thread Tools Display Modes
Old 10-06-2013, 11:12 AM #1
Allanira Allanira is offline
Member
  
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Default Did you know?
I just found out early this morning that November is RSD/CRPS awareness month. I have seen HIV awareness and heart health and breast cancer but nothing on our disease on tv. If there is an awareness month shouldn't it be use to raise awareness in the publics and drs eyes? Just thought I would ask.
Allanira is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
edever34 (10-07-2013), Orrwhat (10-06-2013), RSD ME (10-06-2013)
Old 10-06-2013, 11:15 AM #2
RSD ME RSD ME is offline
Senior Member
  
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default
I didn't know that. Thanks for telling us. At least it's a start to raising awareness about RSD/CRPS. Thanks again!
RSD ME is offline   Reply With QuoteReply With Quote
Old 10-06-2013, 09:11 PM #3
Kevscar
Guest
  
Posts: n/a
Kevscar
Guest
 
Posts: n/a
Default
Keith Orsini AmericanRSDhope has been runnning this for a number of years, Unfortunatly most ameicans have never heard of it
  Reply With QuoteReply With Quote
"Thanks for this!" says:
edever34 (10-07-2013), RSD ME (10-08-2013)
Old 10-06-2013, 09:15 PM #4
Allanira Allanira is offline
Member
  
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Default
Nice we need to get more people informed in ALL countries especially the drs. I already posted a video on my facebook page. I am going to try and get all the people I know informed and educated so they know if I hurt its not them its me.
Allanira is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
edever34 (10-07-2013), RSD ME (10-07-2013)
Old 10-07-2013, 03:36 AM #5
Brambledog Brambledog is offline
Senior Member
  
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default
Yes I knew, and I posted something on my FB page last week which a few friends have copied. We just keep plugging away people!

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
edever34 (10-07-2013), RSD ME (10-07-2013)
Old 10-07-2013, 01:34 PM #6
AZ-Di's Avatar
AZ-Di AZ-Di is offline
Member
  
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
AZ-Di AZ-Di is offline
Member
AZ-Di's Avatar
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
Default
Yes, i echo what Kevscar said. Go to RSDHope.org and they have awareness ribbons etc. and pamphlets. I have given ribbons to my Dr.'s and have given pamphlets to my SSDI Attorney. It's a great site for all kinds of articles.

This disease is rare so "walks" etc. are difficult to organize. Too bad being independantly wealthy does not come with this disease, I think folks like us could gather and go out and really make a difference.
AZ-Di is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (10-07-2013)
Old 10-07-2013, 01:40 PM #7
Brambledog Brambledog is offline
Senior Member
  
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default
Quote:
Originally Posted by AZ-Di View Post
This disease is rare so "walks" etc. are difficult to organize. Too bad being independantly wealthy does not come with this disease, I think folks like us could gather and go out and really make a difference.
Oh that is sooooooo true!!!!! Hang on, let me think about that for a second or ten.......

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
Old 10-08-2013, 03:44 AM #8
chrisandrob4ever's Avatar
chrisandrob4ever chrisandrob4ever is offline
Junior Member
  
Join Date: Aug 2012
Location: Kentucky
Posts: 24
10 yr Member
chrisandrob4ever chrisandrob4ever is offline
Junior Member
chrisandrob4ever's Avatar
 
Join Date: Aug 2012
Location: Kentucky
Posts: 24
10 yr Member
Default
Last year I tried to do a walk and get awareness in the State of Kentucky. I called many TV and newspapers and only 1 station called me back for an interview. We had a small turn out but I still felt like I did something. This year I am not well enough to do it nut will still try to get some kind of awareness be it facebook twitter and writing a letter in the paper
chrisandrob4ever is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brambledog (10-08-2013), RSD ME (10-08-2013)
Old 10-08-2013, 01:09 PM #9
kellyma1973 kellyma1973 is offline
Junior Member
  
Join Date: Oct 2013
Location: Philadelphia, PA
Posts: 10
10 yr Member
kellyma1973 kellyma1973 is offline
Junior Member
 
Join Date: Oct 2013
Location: Philadelphia, PA
Posts: 10
10 yr Member
Default
Is there a webpage or any promotional stuff? I'd be happy to post...
kellyma1973 is offline   Reply With QuoteReply With Quote
Old 10-08-2013, 01:24 PM #10
AZ-Di's Avatar
AZ-Di AZ-Di is offline
Member
  
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
AZ-Di AZ-Di is offline
Member
AZ-Di's Avatar
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
Default Pepsi Hope CRPS/RSD
Please google your local distributor as well as the National switchboard. The National number is 1.800.433.2652. Please tell them you saw the Pepsi Campaign from Admiral Beveraging and RMRSD for CRPS/RSD and that you would like it to reach more than 5 states and you would like a National Campaign for next year. They monitor every call, so the more calls the better the chance.
AZ-Di is offline   Reply With QuoteReply With Quote
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


All times are GMT -5. The time now is 05:32 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home