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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Any suggestions would be most welcomed! I'm trying to stay away from Univ of Colorado Hospital if possible, but would take any suggestions at all. No easy task finding a Neuro Doc in Colorado who knows something about CRPS II. I have a PM doc, but need to fill a vacancy in my team for a Neuro Doc. Thanks in advance!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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#2 | ||
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I would search neurologists in Colorado online. Then type in the doctors names and then the word healthgrades to check their background history. I wish I could help more, but I live in Jersey, so I don't know of anyone in Colorado. Good luck and take care.
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"Thanks for this!" says: | Vrae (10-17-2013) |
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#3 | |||
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I would ask your PM doctor for a referral since he would likely know the neurologists who has referred patients to him for the treatment of CRPS II. The second place to look would be with anesthesiologists with a sub-specialty in treating peripheral nerve issues. Lastly - most Neurosurgeons also are closely linked with the top neurologists so maybe your spine doctor could give you some names? Good luck and I'm sorry you are having a difficult time! I'm freezing here also at 26 degrees ![]() |
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We have a local mag called 5280 (5,280 feet = a mile, we're a mile above sea level), they do an issue called 5280 top docs. I think I have a line on one from that source. I'm excited he's excepting new patients; disappointed 12/2 will be his earliest appt. Waiting to find out what he knows, if anything about CRPS. He has a laundry list of other neuro conditions that he treats, he's pedigreed, rated well, and many years of experience, which makes me hopeful. I recently got much better health insurance (it's been years) and now I am assembling a team. Getting all of the "get to know you" appointments set, and some are reestablishing appointments. Once done with the edit I'm working on, I am going to spend more time trying to get some help, some relief. I've been regressing so much, that it's been scary at times. I'm hoping for good things!
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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#5 | |||
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I too put hot baths in my arsenal this time of year. I should consider adding the hot toddy! ![]()
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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#6 | ||
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Go on Angie's list. You can find a lot of info hopefully on there. Also look up their reviews, malpractice, and if they are affiliated. Remember Im down in NM not Colorado, so I don't know any of the Drs up there.
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"Thanks for this!" says: | RSD ME (10-19-2013) |
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#7 | ||
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Senior Member
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Healthgrades also has info like whether doctor has had malpractice suits against them as well as patient reviews. Good luck and hope you have a good night.
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