Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-23-2013, 01:44 AM #3
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SloRian SloRian is offline
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SloRian SloRian is offline
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Join Date: Apr 2013
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And you know what sucks even worse on top of all that? Stupid selfish relatives that are just clueless, no matter how much you've told them! My RSD has been in remission for years, but I'm dealing with a chronic pain and immune system disorder, and my middle son has no legs and is in a wheelchair, and my daughter has RSD and has missed probably 70% of the first few months of school and we're trying desperately to catch her up (luckily I'm a math tutor and took physics years ago, so I'm tutoring her in those two subjects). My sister-in-law asked how I was a few days ago, and I said how exhausted I was dealing with all of those things, and she said "Oh, I know what you mean - I'm SO tired trying to get our new vacation home decorated! Finding sheets for the beds, trying to arrange for the painters to come and then they cancel! It's just exhausting!"

I kid you not; that was her response to me. I just want to cry. I am so SICK SICK SICK of pushing myself every day.

And then I got a sinus infection.

Arg!!!!!!

But there IS beauty, there IS love, and these illnesses can't take those things away.

I'm sorry for your rough time, Vrae. Have you tried going to paper plates and plastic cups? That helps a LOT sometimes. Just little things like that. I hope you can carve out some time to finish those projects! Good luck, and gentle ihugs
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