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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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Overwhelmed would be an understatement.
![]() I tell you this to paint a small picture of my life. This disease is taking me over and yet I get up every day at 6:30 a.m. and try to push myself. I get up in the morning make four lunches, and kiss everyone as they head out for their day. I sit down at my desk and I am consumed with accounting duties, or doctor appointments, etc., and can’t seem to get to this last edit (I’m a video producer, or I was) out the door. Everyday about the time I am ready to work on it, I have to go take a nap. I am forced to rest, to let my legs and arms rest. I wake up and from shear will make my legs and ankles work. Go grab kids from school, then the drill of homework, dinner, etc. I just want to cry; that I may miss yet another deadline with this project. I desperately want to finish and delivery it. I want the weight of the project off of me. I’m almost just plain mad about it. I can’t keep up. That’s really the bottom line. I used to work crazy amounts of hours a week. When I say crazy, I’m not exaggerating at all. I have come to terms, or at least somewhat, that I have had to cut WAY back on what can be accomplished in a day, but this does nothing to satisfy this project I’m working on. To further complicate things, I am mad as hell that I can’t even do simple things like shopping without being crippled when it’s over. I am missing friendships that I can no longer maintain properly. It’s a lonely place to be in. I try not to dwell on this, but it bothers me greatly. Lord knows I try and try to just accept that this is what it is. Why are some days more overwhelming than others? I don’t mean to be such a downer… but God this sucks!! Slowly losing my abilities and still trying to come to terms with it. Still I wake up every day and keep pushing. Once again I needed to vent.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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