Tessa, I don't think Renee was upset by your comment at all, she was just giving her opinion. You know how apologetic Renee always is if she thinks she's given offence - its the last thing she'd do!

As for me.....I'm not 'lucky', and please don't wish yourself in my shoes - they are darned uncomfortable!! I wish I had meds that worked

Let's not have another apology thread guys. No one here EVER sets out to deliberately upset anyone else, and surely we can disagree without causing offence. Equally I think we need to think very carefully before TAKING offence...

Just my opinion, and I've got a temperature and flu at the moment so I could be saying anything!

Hugs to all, remember guys, you're all lovely lovely people

Bram.

Yes you can use full cream if you want but that will make it even stronger
We have blue top here which is just straight cows milk no additives works fine
for me but full cream would make it stronger because theres more fat in it and
thats what the THC sticks too very small amounts if using full cream otherwise
you could be stoned for days and also only use it when pain is really bad
if you take it all the time your builds tolerance to it very quickly and before you
know it you be using alot and wont help as much

Hope this helps Vrae let me know how you get on if its legal where you live
try to get bubble berry or blue berry from what i have heard these are the strains for neuropathic pain.

Renee,

I respect that you don't agree and wouldn't want you to. But to be clear my mention of the combo's of drugs you are taking wasn't because I was concerned for addiction... that thought never crossed my mind. What did cross my mind based on what you have posted is that A. you have stomach severe stomach pain at times B. that you are still hitting very low places often C. that you have at times intolerable pain that puts you into these low places in between dosing D. that you are on a very low dose of a drug that is normally given for short periods for acute pain and not something that is generally given for long term chronic pain E. there are better substances with less long term ramifications for inflammation and considering the pain increase between doses of your other meds that it would seem beneficial to your own well being to look at other forms of medications that might help you better and still make it so that you can get out of bed every day. I understand the need to take meds and deal with the side effects as many times the benefit of it is better than the side effects. That was not my point.. it saddens me deeply to hear you in such pain and or low spots, so that was my only reason for posting. Doing the same thing over and over and expecting different results is like running into a wall over and over. That is why I asked.. it was out of concern that with your current plan based on your own comments that maybe there is a possibility of improvement with a different combo than what you are currently on. It was just a suggestion or thought provoking comments.

As far as Bram goes -the words luck and wish were said when taking all comments in all threads together that she by her own words is improving and that is where all of us want to be. I don't literally want to be in her shoes or anyone else's nor do I negate anyone's pain.. all I did was think about recent comments and was happy that she was doing better, coping better etc., for whatever reason and for that I am happy. That comment never meant that she wasn't still suffering on a daily basis, we all will suffer if the diagnosis is correct this doesn't go away and only gets worse with time.. but there might be times when it is better and by her posts it seemed at least to me (maybe I misunderstood) that she was in a better place today than she was last year and many times it was said numerous times to hang in there it gets better after the first 6 months.. gosh I am astonished that my happiness for someone who said things were better was turned to make it look like I was saying there wasn't pain or suffering.

I only wish the best for all!

Yes, they are. But.. as I said it wasn't what you were taking that I offered suggestions. It was simply that you aren't getting effective relief sometimes 2 hours before your next dose and in enough pain that you are struggling physically and mentally (at least by your postings) and that you were having stomach issues both of those to many doctors (maybe not yours) if happening frequently (and by your posts they are) should indicate the need for something more helpful to you. Again, it was simply to suggest that there may be a better dosage like the same kind just in a longer acting formula (they do make it in a 12 hour dosage ya know) and maybe one without acetaminophen, so that if it is adding to any of your stomach issues that would help. Several of the drugs you are taking warn specifically about GI issues so I'm not being an idiot in my offers of suggestions.

And just to show you that my comments were out of concern for your overall well being..


On Nov, 10, 2013: 22,944 people reported to have side effects when taking Percocet. Among them, 51 people (0.22%) have Gallbladder Attack.

Linkout: http://www.ehealthme.com/ds/percocet/gallbladder+attack

Oh Tessa. I can't believe you think I 'turned' your comments to look like you meant something else. I don't twist people's words and I didn't think I was with this. Yes I'm in a better place physically than last year, but not in terms of the pain. Doing more is helping my mood and easing my pain a bit, and I do try to concentrate on the positives because it's helpful for me and I think for others too. I do find some other things more helpful than meds so i use them instead. I'm not comparing my situation with anyone's because I don't think that's relevant or helpful - I was just saying that my med situation doesn't mean we should draw conclusions. I don't know how to make it clearer

I've always appreciated your kind thoughts, as I do everybody's. We all want the best for each other, and misunderstandings like this are such a shame. We are all suffering and we can't always pick our words as carefully as maybe we would like. My response to your comments was to try to clarify my situation regarding the meds to anyone reading this thread, not a poke at you.
...

Renee, just a small thought as I'm not sure if I've mentioned it. I had terrible stomach problems on Neurontin and had to stop. It might be because my gastro situation is delicate because of being a coeliac, but my pain doc didn't seem hugely surprised, and said it is hard on the stomach. It's just info, I'm not saying you should quit it or that my doc knows best lol. In the end our decisions are all ours, and we take the responsibility for them, good or bad. Advice is just that, and we can ignore it if we want!
...

I'm tired and I'm a little down. Sorry if this hasn't come across well folks, I've spent ages trying to answer on this thread without offending, but that hasn't gone well . I appreciate your support so much though everyone, and as always I wish everyone an easier day... I'm quitting this thread now, but it's such a useful topic Renee - thank you.

Bram.

Okay. Again just to be clear. I was NOT saying that your increased pain is from withdrawal - I know it is your RSD pain which is what the drugs are meant to treat. Maybe I am wrong but.. if your RSD is helped by taking a drug that is meant to work for 4-6 hours then even the same medication but in the longer acting formula would seem reasonable and keep you out of pain when the other doesn't get you through. It also seems logical and reasonable that taking less pills would be easier on the stomach. Since you mention RSD Hope you also should look back at it regarding the advice it gives on percocet and how it is for acute pain not chronic pain as with RSD.. since you recommended I do so. Regarding PhD's and Doctorates that is awesome but many doctors have all kinds of credentials and still can't diagnose RSD and even kill people everyday with wrong dosages of medications or not looking at the other medications someone is on so that really doesn't say much. Besides.. it was your original post that asked the question about medications so I guess you weren't really looking for input after all.

Added after posting - Also I am not saying percs aren't working for you or that you should change just that maybe the longer acting formula and one without acetaminophen might do better.. it was simply a suggestion not anything else.

Thanks Bram. I appreciate your comment on neurontin, but I have taken it for over two years and don't have stomach problems with it. When I've tried to increase it though, I get dizzy and have slurred speech. That's why I have stayed at the does I'm at for now. But thanks for your thoughts on this.
I hope you feel better soon and have a better day than yesterday. Take care.

*admin edit*

You all need to chill out we are all on strong meds which
make us have a short fuse and bite very easierly now i just joined here
and think you are all awesome women who are going through hell and back
we are all on different meds and that if it works then primo thats awesome
any sugestions are only trying to be helpful not take a dig at you.

We are all in this together and its up to you at the end of the day what
you do.

Please dont fight like this we fight a horrible prick of a thing which
is hard enough on its own with out the stress that your putting on
each other.

So Chill out please

Rock on Peace out Mike NZ
.