Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 11-15-2013, 03:37 PM #1
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Oh Vrae I did read every word, and YES I CAN RELATE! I had something very similar happen when I had to be seen by the Social Security Dr. I did the same thing that day....
I screamed and cried wondered what the *&%# just happened.
(I was denied btw and am appealing through an atty.)
I guess it goes without saying DO NOT SEE THAT DR. EVER AGAIN! Post a nasty review somewhere it may get attention!
I wished I could have been there for you I would have have held your hand (with my good one) and screamed with you!
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
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Old 11-15-2013, 04:55 PM #2
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Vrae my darling girl, if only I could get hold of this IDIOT's work address so that I could paint all over his walls......something along the lines of:

SO NOT SEE DR.XXXXX UNLESS YOU WANT TO FEEL AS WORTHLESS AND HOPELESS AS HE MADE MY FRIEND FEEL.

HE HAS BEEN CERTIFIED AS A HEARTLESS, IGNORANT INDIVIDUAL WITH NO RIGHT TO CLAIM TO BE PART OF ANY CARING PROFESSION.

HE KNOWS ALMOST NOTHING ABOUT HER CONDITION, BUT PRETENDS TO KNOW SO THAT HE CAN DENY TREATMENT.

HE THINKS HER CHRONIC ILLNESS IS IN HER HEAD. HE HAS NOTHING IN HIS.

Ooooohhhhhh grrrrrrrrrrrrrrrrrrrr GRRRRRRRRRRRRRRRRR I could go on and on and on and it would probably get very rude and inappropriate.
.....

Vrae. Babe. You are amazing, you fake nothing, you give so much and try so hard to overcome everything this disease has thrown at you.

It is very very important that you do several things:

1) Never ever ever have any contact with this man again unless it is because he has begged to be allowed to apologise ON HIS KNEES.

2) Do not believe a word he said to you in this visit. He's either lost his mind or he's a vindictive ignorant selfish (ooh I so want to type the word I'm saying out loud) TURNIP of a man who has decided he doesn't want to treat you any more and has turned his back on you.

3) if you didn't record the visit (I always do this now on my phone ) then make a record today, while you still remember everything clearly.

4) I know it's asking a lot, but make a complaint to his practice. If nobody complains, nothing gets done. It's sad but true. If he's turned on you like this then he will have done it to others. Also, unless you contest it, his 'medical opinion' (fume fume) will become part of your record, and every other medic will read it. It's absolutely unforgivable. He clearly has very little knowledge of CRPS - and as a famous person once said 'a little knowledge is a dangerous thing'. He is the reason that saying is true.

5) I know you know this deep down, but equally I know that you need to hear from us too - HE IS WRONG ON SO MANY COUNTS. A TRUE CRPS EXPERT WOULD PROBABLY PUNCH HIM. NONE OF IT IS TRUE.

Vrae, my little jam doughnut of gorgeousness you have to put this day behind you. It sounds impossible, but it will happen. You are too strong to let this muppet shatter your confidence in yourself and your knowledge of your own body. You know the truth, and so does your family. Hold onto that and find the strength to start the search for another doctor to treat you.

I feel quite emotional tbh Vrae. When I saw your thread title, my heart just sank to my boots. I didn't read every line of your post because I was just so angry. You didn't need this at such a time. Obviously this would be bad for any of us on any day - but NOW. NOW?! You have been working so hard and getting through so much every day.

Right. I'm going to stop now. You know how I feel. Just believe us and don't for a second even consider a single word from your visit. That's really important. See this new neuro doc and see what he has to say. Go from there.

All I can do is send you a huge hug, along with a big iMug of steaming hot chocolate with little marshmallows and whipped cream.

Bram
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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Old 11-15-2013, 05:26 PM #3
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Hi Vrae,
I'm sorry you're going through this, and hope you can find someone better soon that can help you to feel better.
Take Care from your friend, Renee.
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Old 11-17-2013, 04:55 AM #4
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Quote:
Originally Posted by Brambledog View Post
Vrae my darling girl, if only I could get hold of this IDIOT's work address so that I could paint all over his walls......
I have had all kinds of fun fantasizing about this.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 11-17-2013, 09:27 AM #5
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I have had some issues with a few doctors too. One I actually waved bye bye (with an attitude of my own) and walked out. Wish you could have seen his high and almighty look. ginnie
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Old 11-17-2013, 11:41 AM #6
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Quote:
Originally Posted by ginnie View Post
I have had some issues with a few doctors too. One I actually waved bye bye (with an attitude of my own) and walked out. Wish you could have seen his high and almighty look. ginnie
lol ... that made me laugh ginnie! It's good to laugh. At times that is all there is left to do. Laugh and let go. I'm move'n on sista. I feel sure this won't be the last !@%$# I run into. I do hope though that there is a long break before I encounter the next one.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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