Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-20-2013, 09:44 PM #7
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heatherg23 heatherg23 is offline
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Location: SouthEast Wisconsin
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heatherg23 heatherg23 is offline
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Join Date: Feb 2008
Location: SouthEast Wisconsin
Posts: 106
15 yr Member
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I had (...long story) a Spinal Cord Stimulator for 9 months and never had any side effects. My leg jerks (which is my effected area) sometimes even my whole body but it's for a split second only.

I would think that that is something that needs to be addressed........like NOW! You're doctor doesn't seem to concerned. Take a video of a seizure and show it to em. Maybe he'll care a little more!

What's worse...not having the SCS and dealing with the pain or having it and dealing with seizures. Sometimes the things that are supposed to help make things worse. Sorry you have to deal with that.

Good to luck to you. Hope you find some relief soon
Heather
__________________
---------------------------------------------------
RSD since 8/2005
Originally in left and right foot
Spread in 2006 and Jan 2014
Both legs, arms.
Chronic pain going back to 1992

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