My mom thinks that just because you take a pill all the pain is gone..done...like it's never coming back. I'm SO SO SO tired of telling her "Just because you take a pill that doesn't mean the pain is gone" "What happens when it wears off. I'd be in complete agony." I said "Prevention prevention prevention". The pills i'm referring to is a muscle relaxer for my back. I have lots of internal scar tissue from SCS surgery. The pain is horrible. Last Sunday I had to sit for 2 hours because my aunt and brother came up. That started the uncontrollable pain. It's been 4 days and it hasn't settled down which is normal. And thanks to Thanksgiving Day I just got done sitting for maybe 4 hours and the pain is even worse. That's when she said "Just take a pill". It's not magic! It's not going to work if I was already in severe pain. It didn't do a thing.

I wish I could live alone. I have had RSD since 8/2005 and my mom STILL doesn't know the name of my condition. We had a fight over the phone when I was housing sitting at my dads last Sept. and I said "Do you even care?" (regarding me being in pain). I also ask if she knew the name of my condition. She didn't say anything. If my daughter was going to be in severe pain for the REST of her life I would try to find out as much about the condition as possible. I would dig and dig and dig until there was nothing left to look up. She doesn't "get" me and I told her that over that phone call. She doesn't care to. She acts like I'm normal. She has never showed that she cares. I'm basically alone in this. So upsetting. She's never given me a hug or sat next to me and said "It will be ok" or "We'll get through this".

Anytime I try to explain something, which would help her understand me (along with the RSD) she rolls her eyes and walks away. Like I'm rambling on and on about something. I want her to understand me!!!!!!

It's a holiday and i'm in tears. Holidays = Pain. I can't sit, stand, walk to far.
I used to love the Holidays pre-rsd but not so much anymore.

Had to vent .I'm gonna go calm down a bit. Whew! that was a mouth full.

I hope everyone else had a great pain-free holiday!!
Heather