Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-12-2013, 10:16 PM #11
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My hopes go out to you with all my heart!
I'm sorry to ask, I've tried many treatments & drugs myself, but
what is IVIG? I had one IV lidocaine infusion is all I know.
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
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debbiehub (12-16-2013)
Old 12-13-2013, 04:24 AM #12
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Debbie, good luck with the IVIg, I'll be so grateful for any information and feelings you have about it as my pain doc thinks she has got me into a study over here soon.

AzDi, as far as I know it's IV Immunoglobulin, and there are meant to be very few side-effects. It is still a fairly new treatment, the thinking is that CRPS is an immune system failure of a sort (although obviously more complex ) and the IVIg aims to boost your immune system to help your body deal with whatever nightmare effect the CRPS is actually having on everything day-to-day. My doc is still on the fence about it, but she thinks it is a low-risk treatment for me to try. I think you have a treatment every week or so for several weeks. As with every other CRPS option, some seem to see a benefit, others nothing. I suppose it's just something else to try, and cross our fingers about

I really need to read up more now, I have been waiting to hear about the study for so long and didn't want to get my hopes up.

Take care this weekend and try not to stress. I'll be thinking of you.

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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debbiehub (12-16-2013)
Old 12-14-2013, 10:16 PM #13
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Ivig is given 4days in a row every month ,,,will keep u updated
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Brambledog (12-15-2013), Lottie (12-15-2013)
Old 12-15-2013, 11:38 PM #14
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IVIG has been used for years with other diseases. I m hearing it is being studied inCRPS. I'm interested in learning more. Best wishes to you!
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