Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 12-05-2013, 05:42 PM #21
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Quote:
Originally Posted by catra121 View Post
Regarding Black Friday...just a tip for anyone who wants to go out but can't handle the crowds. My store and stores like us (Macy's, Kohls, JCPenney, etc) were completely DEAD between 2am-6am. So if you need a wheelchair, walker, cane, crutches, etc...that is actually a perfect time to go where you can be part of the experience (maybe even get breakfast after).

Personally...if I didn't have to work I would not leave the house on Black Friday for anything. But I do know that for a lot of people it's a tradition or fun thing to do...so I just wanted to say that you don't have to miss out on the experience if it's just the crowds that keep you away so long as you can make it out during those slow hours.
That's a really lovely idea catra, and hopefully the stores will try to keep the Christmas spirit going through the long nights It's tough if crowds seem downright scary now, because there isn't a single quiet day of the week any more!

I have finally done some shopping so am feeling less freaked out lol. My lovely husband took a day off and we went into town for an hour, then had a lazy afternoon. Lovely man

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote

advertisement
Old 12-07-2013, 01:41 PM #22
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

My younger daughter had her friend over today and they were making Christmas decorations....

OMG the mess lol!!! They have made snowflakes from white paper, using scissors to cut out the decorations - it looked more like it had snowed in my kitchen!!! Little tiny bits of paper everywhere, bless them

They had also made stars out of wooden lolly sticks - ie they had used about a ton of PVA glue to stick them together, and of course that glue was also over my table, chairs and floor. And the cat's paw. Aww, they were so happy though, I went past at one point outside, and they were sat happily at the table, Christmas music playing, chatting away. Made me smile.

I cleaned up once they had finished, and tried to find some surface space to allow all the glue to dry...I foresee another crafty day tomorrow - she wants to paint them and then apply the dreaded substance - GLITTER!!!

Makes me realise how close it is now though! I've still got so little done...

Hope you little elves out there are ok and finding a smile

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
Old 12-07-2013, 02:11 PM #23
anon6715
Guest
 
Posts: n/a
anon6715
Guest
 
Posts: n/a
Default

Aw, I'm sure they had a great time. Usually, the bigger the mess, the better the kids' day. Glitter seems impossible to get rid of entirely; I think you just have to wait it out.

On Friday the folks at work decided that we should exchange Secret Santa presents and that we should do this on Tuesday. So, I had to go out shopping today as there wasn't enough time to buy something online. I felt a wee bit stressed at times because there were so many people, all zooming around me but I managed to avoid any collisions. Happily, I managed to get it done today.

I also picked myself up a lovely little gift set of coffee syrups at Next. I'm enjoying my treat now.

Kim
  Reply With QuoteReply With Quote
"Thanks for this!" says:
Brambledog (12-07-2013)
Old 12-07-2013, 02:33 PM #24
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Kim, those little coffee syrups are lush.....you've made me want some now!

Well done doing your shopping, must admit I always dreaded the Secret Santa thing when I worked in a big organisation....although on the other hand, I quite miss the jolly Christmas atmosphere of working in a big building with lots of folk I knew.... Guess you can't win 'em all!!

I confess to wondering whether any of the little darlings will give teacher a card this Christmas Last year I started a mini tradition of giving them a little something lol, lovely to see that surprised little smile! Awww...

Today I am mostly liking my ....'s

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
anon6715 (12-07-2013)
Old 12-08-2013, 09:30 PM #25
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

Merry Christmas Everyone. Just a few more weeks now and I'm so not ready. Still need wrapping paper and presents for my canine and feline babies. And of course a HESS Truck for son and great nephew. Oh yeah, and we need a tree. That would be sort of good to have. Well I hope you all have a happy holiday season. From your friend Renee.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AZ-Di (12-08-2013), Brambledog (12-09-2013)
Old 12-08-2013, 09:46 PM #26
AZ-Di's Avatar
AZ-Di AZ-Di is offline
Member
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
AZ-Di AZ-Di is offline
Member
AZ-Di's Avatar
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
Default

Thanks for starting this thread Bram!
And thanks for sharing everyone!! I feel so much better I'm not ready either.

It sounds weird but the burning pain motivated me to put up the tree finally last night. My wrist was burning so bad i put ketamine cream & a sock on it and pushed through. I guess it took my mind off the pain somewhat.
Anyway, there's a small tree with minimal decorations and I felt good I got that done.
I guess I imagined an adversary trying to keep me from doing a tree
I've gotten a few small gifts over the year, but i have no idea how or when
I'll be able to say I'm "done".
__________________
RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
AZ-Di is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (12-08-2013)
Old 12-08-2013, 09:46 PM #27
AZ-Di's Avatar
AZ-Di AZ-Di is offline
Member
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
AZ-Di AZ-Di is offline
Member
AZ-Di's Avatar
 
Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
Default

Quote:
Originally Posted by RSD RENEE View Post
Merry Christmas Everyone. Just a few more weeks now and I'm so not ready. Still need wrapping paper and presents for my canine and feline babies. And of course a HESS Truck for son and great nephew. Oh yeah, and we need a tree. That would be sort of good to have. Well I hope you all have a happy holiday season. From your friend Renee.
Good to see you, hope you're o.k.
__________________
RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
AZ-Di is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
RSD ME (12-08-2013)
Old 12-08-2013, 09:56 PM #28
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
RSD ME RSD ME is offline
Senior Member
 
Join Date: Sep 2013
Posts: 1,500
10 yr Member
Default

Thanks AZ-Di. I'm feeling a little better. Last night I finally slept through the night since I lost my Great Aunt. I miss her alot but am coming to terms with the fact that she's gone. I know she's in a better place now and would want me to be brave and live my life to the fullest. That's the way she lived her life. So I'm going to get off my butt and start looking for a tree. I'm glad you got yours. You've inspired me to get one myself. First I need to break out my voltaren gel for my wrist and then off I go! Watch out trees, here I come! Take care my friend. From your friend, Renee.
RSD ME is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Brambledog (12-09-2013)
Old 12-09-2013, 03:12 AM #29
catra121's Avatar
catra121 catra121 is offline
Senior Member
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
catra121 catra121 is offline
Senior Member
catra121's Avatar
 
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default

Quote:
Originally Posted by AZ-Di View Post
Thanks for starting this thread Bram!
And thanks for sharing everyone!! I feel so much better I'm not ready either.

It sounds weird but the burning pain motivated me to put up the tree finally last night. My wrist was burning so bad i put ketamine cream & a sock on it and pushed through. I guess it took my mind off the pain somewhat.
Anyway, there's a small tree with minimal decorations and I felt good I got that done.
I guess I imagined an adversary trying to keep me from doing a tree
I've gotten a few small gifts over the year, but i have no idea how or when
I'll be able to say I'm "done".
That's sort of how I am with everything...my boyfriend calls it my stubbornness kicking in when I refuse to NOT do things (like work, put up the Christmas tree, garden, stitch, etc). I actually am much better mentally (if not physically) when I do these "normal" things because it gives me other things to think about besides my pain. When I was off work and home all the time (trapped on my couch is the most accurate description) I was miserable and could think of nothing but my pain and misery. I was so happy when I was able to do the dishes for the first time after that really bad patch. ME...happy doing dishes...the girl who would do just about anything else to get out of doing the dishes growing up...lol! But it felt like such a big "win" for me to do that simple little task. We all need to celebrate all those little wins every day.
catra121 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AZ-Di (12-10-2013)
Old 12-09-2013, 04:25 AM #30
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Lol ditto on the stubbornness! This weekend hasn't been the best pain-wise, mainly because of the aforementioned stubborn streak My youngest wants her top bunk off (she's too tall now, bless), and to do that we needed space in the stacked-to-the-gunwales garage for the bed and mattress (in a mattress bag, I'm not chucking it out lol). Was it happening? Despite me asking nicely about six times, and nagging about three? Heck no . So I basically frogmarched my darling husband out there and we've cleared a space. Screwed up my leg and feet though. It makes me so MAD that to get anything like that done, I HAVE TO DO IT WITH HIM. I mean FFS.

Then yesterday it was a nice day, and fairly mild, so after another half hour of garage fun I said we ought to take the dog down to the fields near town and have a coffee. Would he have thought of it himself? Would he have done it if I'd merely suggested it?! Heck no. So we all went and had a lovely walk, further than I have for a long time, it was too nice a day to waste. More ouch. Today everything is hot and protesting, and I know I completely broke all the rules about pacing, and totally overdid it, and am now paying the price.

But guess what we all know, darling ones? If we don't do these things, they just won't get done!!!!!

I'm finding my hips are defintely sore and hot after any walking more than a few minutes now....not good. My right hand has been awful this last week, and that's a new one too. My whole left side was red and sore Friday night. Feel like I'm falling apart fast, someways I worry how much more opportunity I'll have to do these things, so maybe I should cram stuff in while I can vaguely do it

Roll on Christmas! Bring it on!

Take care everyone x

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
AZ-Di (12-10-2013), RSD ME (12-09-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Merry Christmas! Buffheart Alcoholism, Addiction and Recovery 3 12-31-2008 04:27 PM
Merry christmas everyone! PolarExpress Social Chat 2 12-25-2008 12:50 PM
Merry Christmas DanP Peripheral Neuropathy 77 12-30-2007 11:49 AM
Merry Christmas SallyC Multiple Sclerosis 29 12-28-2007 09:17 AM
Merry Christmas jingle Survivors of Suicide 2 12-25-2006 01:04 PM


All times are GMT -5. The time now is 04:00 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.