Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 12-06-2013, 11:31 AM #1
Allanira Allanira is offline
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Default ugh I'm almost done.

I swear if I wasn't preggo and have a 2 yr old I would run away. I am done. I ask for help and get no reply from friends and family around me. My house looks like a freakin trash dump, I hurt and can't do anything about it, and I am tired. But hey its just me, I can do anything. I'm freakin superwoman. Yeah right. I can't even get my dog to listen to me. Yet I am expected to just deal with it. If I wasn't afraid of breaking my hand I would go out and hit a tree (better than hitting the dog or goober boy). Yes I'm havin an emotional melt down here. I will be better soon. I have no choice but to "get over it". I'm just tired of people ignoring me when I say something. I feel like I can't do anything right or please anyone no matter how hard I try. Sorry needed to spill it or I was gonna blow. If I say anything to people around me I get discounted as oh its just her being pregnant. Oh she's just over reacting. Oh it's not that bad.
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moosey2me (12-06-2013)
Old 12-06-2013, 12:09 PM #2
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That's rough Allanira, I'm so sorry you're having to put up with that kind of indifference when you are suffering so much right now.

I know you have asked for help, but have you tried sitting your family down and talking to them all seriously about this in a very direct way? After all, you are not only living with a chronic disease that causes huge pain, but you are very pregnant and because of that you can't take any painkillers to help you get through it. Ask them how they would cope if you strapped a ten pound bag of sand to their tummy and then stabbed them in the leg/arm, because that's what it feels like for you, yet you're expected to do so much.

You will have to start slowing down now its this late into your pregnancy anyway, and they will have to help. I think they are just trying to get away with not doing much as long as they think they can... It's not fair and it's not right, and you and your baby could be at risk because they won't help.

I know you're just venting and didn't ask for my advice, but I'm worried for you at this stage of pregnancy coping with so much, and it's not right that you are also dealing with a house full of lazybones who are letting you work yourself into the ground

Take care of yourself and maybe consider going on strike if they don't take this seriously! Tell them you will have to hire a cleaner and take the money out of their allowances...?!

I hope you have a better day tomorrow and that their attitude changes. Hang on in there, and do some deep breathing to help you calm down and get through this. High BP is not what you need right now.

Bram
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
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Old 12-06-2013, 12:47 PM #3
Allanira Allanira is offline
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It's just my son and I in this house full time. My husband tries to get down every weekend but its not alway feasible. My in laws live across town from me which is lik 20 minutes away. They were helping till Thanksgiving then stopped. I guess they are mad because I wouldn't let them come to my son's dr appt yesterday. I had to drive him into El Paso for it and she was insisting I let her come with me. It's a long drive yes and she doesn't drive on highways so what help would she have been. I put a movie on for him and just went. If I need someone to go with me it will be to help drive not sit here and prattle in my ear and tell me what I'm doing wrong. We got there did the appt and then came back. We didn't doddle around like she would have wanted to. It's amazing how people start feeling entitled to run your like just because you have a disability, and/or pregnant. 4 more weeks. Then I can tell all of them to take a long hike off a short bridge. Plus I can start treatment and hopefully get the pain under some control and I can get more things done.
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Old 12-06-2013, 02:34 PM #4
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Hi,
I'm sorry you're having a hard time. I get discounted all the time, like you said. My mom thinks taking a pill will make it go away. My mom cares so much that she doesn't even know the name of the condition. I live with her and I've had RSD for 7 yrs now. Everytime I try to explain something...like why I can't do something, she rolls her eyes and walks away. I want her UNDERSTAND me (and the rsd). She could care less. I don't want to be in the same room with her. It's exhausting. At least my brother cares. He's had some pain issues, short lived, but at least he knows what it's like.

I think people do think we're Wonderwomen. Like we can withstand any pain that comes our way. LIke "Big deal it's just pain". "Take a pill and get on with it".

I can't imagine having a family when you have RSD. I will never have a boyfriend, husband or children because of this cruel condition. I've accepted it.

I've been having a mini meltdown for 2 days. Emotionally, physically. Winter weather makes the pain worse which doesn't help.

It's good to have people to talk to on here. This is one place where everyone understands everyone.

Take care of yourself!!
Heather
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RSD since 8/2005
Originally in left and right foot
Spread in 2006 and Jan 2014
Both legs, arms.
Chronic pain going back to 1992

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moosey2me (12-06-2013)
Old 12-06-2013, 02:42 PM #5
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Maybe somebody should make us all capes with "CRPS Wonder Woman" embroidered on it.... I'd buy one!!!!

Shame you can't embroider in sarcasm though lol

Bram.
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CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
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moosey2me (12-06-2013)
Old 12-06-2013, 02:52 PM #6
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Maybe you'll deliver early? What is going to happen when you have the baby? Will your DH be with you for a while?

Unfortunately I do know what it's like to be there (pregnant, in so much pain I couldn't walk due to my pelvis coming apart early) and I was induced at 38.5 weeks so I could have some relief. The last few weeks were hell. But I had my DH and not another child.

Do you have a friend who could come stay with you? A cousin or somebody at all? While your in-laws are helping some, they are not helping always in the right way and you could use somebody who is a peer.
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Old 12-06-2013, 04:42 PM #7
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Talk with your obstretrican about how you are feeling. Maybe the doctor will order you on bedrest and then people around you will have no choice but to help out. The way things are going right now is not healthy for you or for the new baby.
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 12-06-2013, 05:00 PM #8
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Default Hello Allanira

This is the best place to be when you are fed up with people, and situations you don't have control over. Constant pain wears you down and makes you tired. I don't have CRPS but I have friends that do. I hope your doctors will make more effort to help you. It's OK to be over the top. Stress of a child, pain, holidays, demands, are all there. We are here to listen for sure.
I came here a few years ago, melt down was already happening. Best thing I ever did, and the friends here, DO understand. Any thing you can do to lower the pain level? Anything work at all? Have you been offered Ketamine?
There are infusions. Have to go back and re-read your post again. I will keep in touch. You found a great site Allanira, and there will be support. ginnie
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Old 12-06-2013, 06:21 PM #9
Allanira Allanira is offline
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I can't do any of the treatments till this little boy is born. Also just found out my husband can't come down this weekend. So now I have trash stacking up outside because no one can take it to the dump. My mother (who has health issues also) will be here next weekend and staying till a little after the birth. Its just amazing that all of a sudden I no longer exist to these people. The only one they want to hear about is my 2 yr old son. Not my new little one or me. I'm not blaming my son he's usually really good. An angel almost. Even my "friends" aren't calling or stopping by. I think that's my main thing. I don't exist anymore. If I disappeared no one would think about me. I'm just irritated and hurting. With the weather changes, and my pain and this stupid disorder is spreading I just want to curl into a ball and cry. But I can't do that till my son is asleep.
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Old 12-06-2013, 09:49 PM #10
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Default Thank you

I really have to say thank you to all of you..I loved the support each one of you gave..You guys are wonderful people.Rsd is terrible but the support wonderful..My heart aches for you.It is a rough time right now,and I sure hope things get better..Best Wishes..Hang in there..
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