Before RSD I was really healthy but once the RSD went full body it seems like my whole body is falling apart with e RSD, I ended up with thyroid cancer, then gastrparsis. Then sarcoidosis to the lungs liver and stomach, then my hearing is starting to go and now have been diagnosed with avascular nacrosis where blood flow doesnt get to the bone and the start dieing and my ankle is going quick my hip and knees arent so bad just scare I will need bone grafta and knee and hip replacements at 26 years old. The onlything else if just for my head to fall off lol...

Samantha

Hi Samantha

That is one brave little 'lol' at the end of your post... I find it hard enough at 40+ to deal with this disease - I'm not surprised you are scared of the future when so much has happened at such a young age. It's not fair. That's a massive understatement though, because it completely massively sucks. BUT you are obviously a fighter, and you will still have a life despite what this condition does to you.

I hope your bone problem doesn't make things too much worse, and that you can put off any surgery for as long as possible. Are you taking the Vitamin C daily? It's no cure (we wish it was tho!) but helps to prevent spread and strengthen your immune system. Have you looked over your diet? I'm sure you eat healthily anyway, but make sure you are getting enough vitamin D, etc. Magnesium is also really important and is absorbed well through the skin via the good ole Epsom salts

I've got to dash as my husband has just got back and we have about a million OMG last-minute Christmas things to sort out... But take care of yourself and I hope you have a better day.

Bram

Hi Samantha - so sorry that you have to deal with this. I can understand how you could feel overwhelmed. Everyone here is so helpful, feel free to pop in anytime. Brambledog as always is quick to contribute her sage advice! Focus on what you CAN do to bring yourself comfort and not on things that can't be done. Be well. Lottie

People with RSD should never ever have any other health problems. This is enough. The man upstairs must think we can handle a lot!
Sorry to hear about all your health problems. I couldn't imagine! My body started to fall about pre-RSD. I wonder if RSD can affect organs.

No one should have to go through what you have and ARE going through. So sorry!
Heather

Hi Samantha. I'm so sorry you have rsd and at such a young age no less.
I've felt like my body has been falling apart and my immune system has weakened since I've had rsd. I hope that you feel better soon and maybe someday go into remission. Don't give up hope. In the meantime, I'm sending soft hugs your way.

I'm so sorry too!
Too young!

I have RSD/TOS going for more than than thirty years. I find myself crawling around on ha dands and knees.
Trying to crawl my way i the next meet. It is SO difficult to bathe or shower. And, get dressed.

Oh well, I keep praying' every thing is gonna be alright!


p


asb

Thank you everyone for your kindness, It helps so much to have others to talk with.

For me, i have RSD for 6 plus years. I also find that i have more pain, all over my body. It is easy to count where does it not hurt instead of where does it hurt. How to cope? Try to live one day at a time.