Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-05-2014, 08:49 PM #31
89danboy 89danboy is offline
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Originally Posted by alt1268 View Post
Danboy
I'm sorry for the pain that you must have been in and may still go through. But I'm grateful to have u here on neurotalk with me.
It sounds like u went through a major ordeal.
I am eating around 800-1100 calories on okay days. But I did take a bentyl which is a muscle relaxer for ur small intestine and I'm doing better today. However I'm scared to eat. I'm hungry. But scared of the pain.

I will definetely keep remeron in mind though. Thanks
Yeah atl ,I hope you try my advise.i know what you are going thru .befor remeron I really wouldn't have much of an appetite .when I did eat I would pay dearly,it would tAke me several hours to recover ,it's hard to describe the pain and uncoftarbleness it cause.but it's agony.i still have many problems with my gut.i hardly eat and it looks like I have a beachball under my shirt .i was a body builder befor I got rsd.thats all gone .now my face and stomache is full of inflammation .btw if you do get the remeron ,you tell them you need the 30 mg ,15 isn't enough. I'm now on 30 At nite 15 in morning.alt trust me on this it will make your life so much more comfortable. God bless
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Old 02-08-2014, 07:48 AM #32
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Crazy

Went to dr yesterday. He said he does not even want to hear about abdominal rsd. Before I could. Even ask why we were interrupted by a workers comp. case worker. (Wtf) claiming she was there about the status of me getting a stimulator. We haven't talked stimulator in years.
Nor did she understand why I was on my meds. So here I go again battling up hill.
In the meantime, I am also finding that my toes are tingling and going numb even first thing in the am. Well on to the next apt.
Thank you guys for being there.
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GOD help me be faithful in the midst of my suffering. Alt1268
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Old 02-08-2014, 08:42 AM #33
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Oh Alt what a crummy visit, no wonder you are disappointed. These doctors seem to forget that just living in pain is an exhausting thing, and finding the energy to have to fight for everything against people who think they know everything while knowing so little of what matters....is just too much at times.

I hope the thing with your toes settles, you don't need anything else to deal with Maybe try waking them up in the morning with a little general foot massage. Mine quite like that if I can't feel them like I should. I massage with a little monoi oil and then put on some warm socks and walk about for a few minutes. It seemed to help when things were going numb sometimes, and now I don't have to do it very often.

Take care of yourself and remember that we are right behind you, and that those medics are the sloppy ones, not you. It drives me mad when docs forget which meds I've tried or ask me to repeat basic stuff they should have in front of them. Wastes our precious and rare time with them. Hang on in there.

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Old 02-08-2014, 08:51 AM #34
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That really sucks alt! What is wrong with drs these days?? Sorry you are having such a rough time with this and dealing with a WC idiot on top of it. Hope your battle isn't too difficult and that your tingling toes is a temporary thing.

Hang in there,
Nanc
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