Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-03-2014, 11:29 AM #10
ing2foru ing2foru is offline
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Join Date: Aug 2013
Location: Oklahoma
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ing2foru ing2foru is offline
Junior Member
 
Join Date: Aug 2013
Location: Oklahoma
Posts: 8
10 yr Member
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Quote:
Originally Posted by alt1268 View Post
So I talked to my pain mgt. dr. and they tell me they have never heard of abdominal rsd and to keep having test to see if anything comes back.

Ugh! I have been with my dr. for almost 4 years now and hate the thought of going somewhere else, but I just don't know how long or how many test a person should go through before they throw in the towel and say "yes, it is abdominal rsd."

Any one with any suggestions welcomed!
Alt,

I just wanted to let you know that I do have CRPS in my gallbladder region after my gallbladder was removed. I couldn't eat for 5 years. Every time I did, I was in sever pain. The only thing I could tolerate was broth, noodles, potatoes & toast. That was my diet for those 5 years. It took me going to Mayo Clinic to find out what was wrong. They put me on Lyrica & Cymbalta. It helped me enough that I can eat normal foods. I had CRPS internally first then developed it after my ankle surgery, so I was kind of backwards.......My family always said I wasn't normal!

I will answer any questions you might have if I can about my experience. Just ask!

Melissa
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