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| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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12-31-2013, 10:15 AM
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Oh my gosh!!! I can't believe you call it "driving Miss Daisy"!!! My husband and I say that all the time. Because my right foot/ankle/leg is affected, driving is a challenge. So, when possible, he drives me around. :-) Thank you for your thoughtful response on my balance thread. You are awesome!!
Go tell it on the mountains!!
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1999 Chronic spine pain related to Degenerative Disc Disease, Sept 2001. C6 / C7 discectomy & fusion. Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement. July 2011 removal of broken . Artificial Disc Replacement. Woke up in recovery room with RSD Monster.: . Aug 2011 Stabilization of spine at L3/L4/L5. October 2014 Rheumatoid Arthritis. |
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12-31-2013, 11:03 AM
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 lol.... And I would go to the mountains, but I am looking out my window at The Great Divide and damn girl, it looks COLD lol.... so just as soon as they get a little more above FREEZING I will tell my husband that my new friend, who ironically shares my name, said that I should do just that! I think that in the spring I will plant me some perennial Daisy's in solidification and honor of my, your, and all the others who share our name... Miss Daisy. Have yourself a good day! 
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004 Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else. Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb, |
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12-31-2013, 12:31 PM
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You are a crack - up! Thank you for making me smile!
:-)
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1999 Chronic spine pain related to Degenerative Disc Disease, Sept 2001. C6 / C7 discectomy & fusion. Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement. July 2011 removal of broken . Artificial Disc Replacement. Woke up in recovery room with RSD Monster.: . Aug 2011 Stabilization of spine at L3/L4/L5. October 2014 Rheumatoid Arthritis. |
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| "Thanks for this!" says: | Vrae (12-31-2013) |
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12-31-2013, 05:17 PM
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Mine is the same basically! I HATE the weight I've put on. Growing up I was always thin (too thin really) In my mid to late 30's I was average to thin still eating whatever I wanted. I do blame pretty much all of it on this damn monster. Between the medications, no activity and diet. I know for me it is hard to eat right when your stomach is bothering you or you are feeling horrible and can't prepare food or shop.
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Zookeeper ~Shelly~ |
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| "Thanks for this!" says: | Vrae (01-02-2014) |
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12-31-2013, 09:28 PM
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Just LOVE the original post Vrae!! So cute & funny - something we can all relate to too! I keep reading your post trying to get myself out of the dumps.
Of course, I have that battle as well. The meds have caused weight gain despite trying to be active everyday and watching diet as much as possible. I don't think 20 stellate ganglion blocks have helped by thyroid either. My real battle will be how to proceed with life in general. I know I'm about to be "separated" from my job. Really, I guess I should be thankful they've strung me along this far. My short term disability changed to long term. The long term provider required that I apply for S.S. disability. I did - 4 mos. later denied. Now going thru an atty. and waiting......................... All that is for a later post I've been meaning to do. Can't type enough before I get logged out. I'm just so slow anymore. So, for now main New Year's Resolution: Find useful purpose in life. 
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist. |
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| "Thanks for this!" says: | Vrae (01-02-2014) |
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12-31-2013, 10:25 PM
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Az-Di - Are you still receiving LTD? Most STD/LTD require everyone to file for SSD but that should not affect your ability to recover benefits owed to you for your current claim on your LTD policy. They are just looking to offset your benefit amount if you are in fact approved for SSD. Just wanted to be sure you weren't giving up on LTD while you wait for SSD approval which for some can take years. |
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| "Thanks for this!" says: | Vrae (01-02-2014) |
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12-31-2013, 10:28 PM
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Quote:
Last edited by murgir; 12-31-2013 at 11:44 PM. Reason: Adding |
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| "Thanks for this!" says: | Vrae (01-02-2014) |
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01-01-2014, 02:16 PM
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I used up 60 P.T. visits (allowed by insurance) in 5 months trying so agressively to get this to "snap out of it". I'm glad for the new year to go back to that. It just feels weird. I'm 54 y/o and have almost always worked (2 1/2 yr. time out for kids). Have never even tried in my life to collect any benefit in this way.
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist. |
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01-02-2014, 11:07 AM
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I wish I had the luxury to think about something else beside pain. I'm just gonna try to survive another year. (I say that every year)
 Happy new year! Heather
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--------------------------------------------------- RSD since 8/2005 Originally in left and right foot Spread in 2006 and Jan 2014 Both legs, arms. Chronic pain going back to 1992 . |
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| "Thanks for this!" says: | Vrae (01-02-2014) |
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01-02-2014, 11:58 AM
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I know I said my big goal is to set aside a certain amount of money every month...and that is still my number one...but a friend of mine wants to do this group thing where we all set health goals for ourselves and push one another to commit to them and make it happen so I figured...why not? So here's what I came up with:
-Start every day eating a piece of fruit (or several...but at least one) -No caffeine -Eat at least 2 salads a week -No ordering out except for special occasions (people coming over, etc) -Bring lunch to work instead of ordering out -Make "from scratch" meals at least 4 days a week. -Go to the grocery store at least once a week. I know from experience that the goals need to be very specific and measurable because something like "eat healthier" is too vague and hard to stick to. I've actually already been on the no caffeine for several months now and am proud I have been able to stick to it. I do follow the 4 Fs diet but this past year I got a bit lazy and started ordering out more. So I want to get back to being good and break those bad habits. |
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| New Year's Resolutions | The Stumble Inn | |||
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| My New Year's Resolutions | Bipolar Disorder | |||
Even though most of us, if we are making a resolve to do better at something, most of these vows will be gone and forgotten by Valentine’s Day, and in some cases (probably my own too) even sooner. Nonetheless I thought I would ask… do you have any?
okay… more than a few. 
. I would love to blame it entirely on my meds, which I KNOW are not helping matters 
, but I have got to change my eating habits. It used to be that I could just burn it off. Of course I’ve never had a high metabolism 
, but I was at least able to workout. My age is certainly now also working against me too, great! 
I can’t get my head around how I’m supposed to get my metabolism up, my heart rate up because it’s not just the normal omg I haven’t used that muscle in a while, and I’ll just be a bit sore for a few days. It would be more like OMG where’s the dilaudid drip? 
And can I have one while I try to be active? Now let’s define active… Oh and we’re going to need tons of IV Zofran so I don’t puke 
, and do you even think I’ll be able to sit up, stand or even walk while I’m on these meds 
(if that was even possible)? Of course I’m being facetious… SO WHAT THE HECK IS ONE TO DO that has this damn disease? Just diet, no exercise? I guess they call it physical therapy. Well some of the priciest gyms are cheaper than PT. 
Linear Mode
