Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-29-2013, 04:48 AM #1
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Question New Year's Resolutions?

Even though most of us, if we are making a resolve to do better at something, most of these vows will be gone and forgotten by Valentine’s Day, and in some cases (probably my own too) even sooner. Nonetheless I thought I would ask… do you have any?

I don’t usually play this game, but I am thinking of giving a go at figuring out how the heck I can drop a few pounds, okay… more than a few. I certainly found a few extra over the holiday’s and they sure weren’t needed given how much weight I’ve gained over the last few years . I would love to blame it entirely on my meds, which I KNOW are not helping matters , but I have got to change my eating habits. It used to be that I could just burn it off. Of course I’ve never had a high metabolism , but I was at least able to workout. My age is certainly now also working against me too, great!

I can’t get my head around how I’m supposed to get my metabolism up, my heart rate up because it’s not just the normal omg I haven’t used that muscle in a while, and I’ll just be a bit sore for a few days. It would be more like OMG where’s the dilaudid drip? And can I have one while I try to be active? Now let’s define active… Oh and we’re going to need tons of IV Zofran so I don’t puke , and do you even think I’ll be able to sit up, stand or even walk while I’m on these meds (if that was even possible)? Of course I’m being facetious… SO WHAT THE HECK IS ONE TO DO that has this damn disease? Just diet, no exercise? I guess they call it physical therapy. Well some of the priciest gyms are cheaper than PT.

Anyway, this is just ONE area of my life that needs a bit of improvement. I would love to hear any of your resolutions….


Ps... I had fun with the animated gifs
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 12-29-2013, 10:48 AM #2
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My new year's resolution is going to be to save money. I have a certain amount that I want to set aside each month (no excuses). That will mean curbing my spending, grocery shopping with a budget, etc. It's going to be hard but I think I can do it if I just commit and focus.
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Old 12-29-2013, 12:08 PM #3
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My new year resolutions are to try to eat healthier, exercise more, be more postiive, save money, be kinder, go to church more, appreciate life more and to try to stop worrying and apologizing so much.
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Old 12-29-2013, 03:33 PM #4
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Save Money: This is a good one Catra, and something I too need to do!

- Our recent trip to San Francisco and then Christmas for five children and one grandbaby, and our lack of my income really wiped us out. Just yesterday we sat down looking at how to rebuild our rainy day fund. We will be giving it our best to do the same, and save some money.


Be kinder, more appreciative, more spiritual, and stop worrying: Yes Ma’am Renee, all these for me too.

- I tend on average to be kind (I think), but boy I can lose my temper and patience with my young adult children. It’s like I stuff it down, stuff it down, and then explode with “what the hell were/are you thinking my dear child?” this also holds true with the medical community who don’t show interest in learning more about this thing we call CRPS/RSD.

- Spirituality, for me, does not include a weekly trip to church for fellowship. I realize it is a very popular choice for many, and one which I appreciate and respect in others, but do not practice myself, anymore. For me, church is just me and my higher power connecting; that comes in many forms and from many sources for me. Most often that happens here at home, but I much prefer it among the trees, mountains, and bonus if it’s next to water too. When in those places I feel closer to the creator and stand in awe of life and beauty, and I ALWAYS feel more centered, relaxed, and creative. And then it’s awesome because I tend to worry less too, and seem to take life more in stride and pain levels are lower. Yes Vrae! Do more of this!! I would also really like to learn more about meditation.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 12-29-2013, 05:25 PM #5
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I like the meditation idea too, so I'm going to add that to my list. Thanks Vrae. I hope you and everyone else have a very happy and healthy new year.
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Old 12-29-2013, 07:00 PM #6
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During my recent trip to the er I found that my lipase was low. Even though the dr.s don't seem worried about this, I have read that it can cause an fat not to be dissolved properly this increasing weight and cholererstral and other things.
So my New Years resolution is to eat better and exercise.
Trying to get my hubby to join a gym with me.
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GOD help me be faithful in the midst of my suffering. Alt1268
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Old 12-29-2013, 10:45 PM #7
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Hi Vrae!! You were in a funny mood using those gifs!!! Very cute, made me smile! Going outdoors as you described will accomplish multiple things: connecting with your higher power, connecting with YOURSELF in the quiet, getting sunshine and fresh air and getting away from the food pantry. Enjoy!
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1999 Chronic spine pain related to Degenerative Disc
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Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 12-29-2013, 10:50 PM #8
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Vrae - I am curious if you saw my "tell me how you balance it" thread. I am interested in how people balance their public face with the private and personal experience of pain and its challenges. Your thoughts would be welcomed! Thanks for reading.
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Old 12-30-2013, 12:35 AM #9
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Hi Alt! you too? I also had yet another trip to the ER, oh I don’t know, but I think it was like a 7-10 days ago. So sorry to hear that you were there too , and I have to be honest, I had to ask the Google Gods about Lipase to learn more about it. Very, very interesting. Best of luck on the resolution and I’ll be right there with ya sista. <sigh> My mind is so motivated and yet my body is saying… really? Seriously? Okay…. BUT….It’s gonna hurrttt! I see a new neuro doc in a few weeks and perhaps with enough pain control I can be more active. That would be a miracle.

Oh Lottie… LMAO, yes…. Indeed, that would keep me out of the pantry for sure. That’s brilliant! I had not considered that. I think I will have to budget more gas money for my SUV. I’m about 45 min from being submerged in the mountains, and I will need to get my husband to drive Miss Daisy. Honestly, we do run for the hills at least once a quarter and sometimes more in the summertime. You’re right, you do connect with yourself and for me, it’s also an opportunity to reconnect with my husband too. Good thing hu? Because he is the driver. lol All kidding aside, it really does do something magical for my soul when we are able to get deep into the Rocky Mountains.

The balance thread: I did see it hon, but if I’m being honest, I haven’t read all of it, or any others for that matter. But yes, absolutely…. I’ll take a look and see if I can contribute. I’ve been bad about posting/contributing lately. Thanks for asking! Made me smile. Hope you’re doing well!

Ps… yes I was in a fun/silly mood. I’m not sure that it has left me yet.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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Old 12-31-2013, 08:20 AM #10
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I also want to add to my New Year's resolution to be more understanding, less judgmental and more forgiving, as well as be around people who are the same way. Happy New Year to All!
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