Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-31-2013, 12:01 PM #3
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Vrae Vrae is offline
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Vrae Vrae is offline
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Join Date: Apr 2011
Location: Denver
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Quote:
Originally Posted by catra121 View Post
I'm sorry you are having to deal with this Vrae. I get this "stuck" feeling often...usually in my hands but have also gotten it a few times in my leg too. Lately in my hands I can actually see sometimes when the muscles spasm and then get stuck in that my hand actually starts to look deformed the way the muscles have contracted. It's incredibly painful but the only thing to do about it is to massage it out and forcibly move things back to their original position. There have been times when BOTH hands froze up...and then I had to have my boyfriend force them back into a normal position. Hurt SO bad and was an awful experience for both of us...but is better in the end than the alternative of just leaving them like that which is also excruciatingly painful (as I'm sure you know).

Following the massage and repositioning...a hot bath in Epsom salts is helpful. Doesn't really work with my hands but when I've had it in my leg...ultrasound heat therapy helps as well following a bath. I got my portable unit on amazon for about $40 and it was definitely worth it.

I have found that there are certain movements I need to try and avoid because they always result in this sort of reaction. Holding things a certain way...stretching a certain way...whatever it might be. Once I can pinpoint what causes it...I try to avoid those things as much as possible or try to find some way to mitigate the situation (flexing my hands constantly, changing positions quickly, etc).

Wish I had more to offer you...but I do understand. My boyfriend tells me to eat more bananas. I've done this...but it doesn't seem to make any difference...lol! Oh well...at least they are good for me.
Hi Catra! Yes, me too. I also can actually see the contraction happening, and yes the area where it’s happening will look deformed. This is a very accurate description. And like you I ALWAYS rush to the area and massage it out as much as possible, or stand up if I was sitting, or move around like I have just stepped on a snake. Freaking out and in PAIN… omg, omg, omg stooooopppp! Thank goodness it’s not this crazy every time, but there’s always a residual pain of things having been or feel like they’ve been overstretched.

The spasms seem to come in many forms. From the snake jump, which to me feels more like a Charlie-house, or where it feels like it will get stuck (which looks very similar to the snake jump), to just an annoying jerking/twitching of a muscle (anywhere), or fingers, or toes. It’s bizarre.

Ultrasound Heat Therapy…. Hum, I’ve not heard of that. That sounds fantastic! Is it like a blanket or a towel? I wonder if it is large enough to apply anywhere. Again, I will Amazon that. Bananas… lol… oh yes, I have been offered AND tried this same recommendation. You’re right! they are good even if they don’t seem to do a damn thing for CRPS spasms. Lol.
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CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
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