Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 12-31-2013, 12:28 PM #2
Lottie Lottie is offline
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Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
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Quote:
Originally Posted by Lola39 View Post
Hello. I had sun poisoning June 1. A week after the sun poisoning, I had electrifying pain and muscle spasms in my right shoulder blade and down right arm and wrist. Diagnosed with internal shingles brought on by weakened immune system from stress and sun poisoning. Pain never went away, and swelling began in painful shingles areas as well as lymph nodes on right side. Two doctors diagnosed with me with RSD/CRPS. Having a difficult time. Meds and PT have not helped and doctors don't want to deal with me. It's been 6 months and I can't imagine going through life feeling like this. As I'm sure everyone on here knows, it's difficult when friends, family, and coworkers don't understand what they can't see. Hoping the new year brings relief and understanding.
Welcome Lola39! I am so sorry this has happened to you. I have not heard of internal shingles. Do you think that is actually what you had? OR do you think you were misdiagnosed? My understanding is that post-herpetic pain related to shingles can be very painful and last for months. Look for a good pain management doctor (they are usually anesthesiologists) who can help you with the pain. Feel better. Lottie
__________________
1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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