Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 01-04-2014, 03:01 PM #1
Hopeless Hopeless is offline
Senior Member
 
Join Date: Jun 2013
Location: USA
Posts: 1,232
10 yr Member
Hopeless Hopeless is offline
Senior Member
 
Join Date: Jun 2013
Location: USA
Posts: 1,232
10 yr Member
Default

Quote:
Originally Posted by Allanira View Post
So I went and finally got the staples removed yesterday by the same dr that did my c section. ? I swear this dr is incompetent. I still have massive bruising on legs and belly. He put on steri strips and those immediately started coming off at the bottom. So now I have an open incision that I had to bandage up. I tried to tell him to numb me before taking out the staples and he ignored me. I told him repeatedly I have CRPS and he gave me a blank look. I will be filing a complaint today about how he's "taken care" of me. I also have to go back in and have something done about this incision being open and bleeding again. I went in yesterday about it still bleeding on day 10. Now its day 11 and I still have the bleeding and an open wound. Ugh the only thing he's gotten right was counting all the surgical instruments and gauze before closing me up. Well and that my son is alive and well after he was born. Wish me luck. If I don't get some satisfaction from him today I may seriously consider a malpractice suet on him.
So sorry you went through this with a doc with such little compassion. Glad the next one treated you better. I have found that some specialists, regardless of their specialty, seem to have forgotten all the other medicine they learned and only retain info about their specialty. Mention something outside their specialty and they seem clueless. My endocrinologist seems to be an exception as he exhibits profound knowledge on almost any specialty. I met someone that knew him in school and said he was always SUPER smart.

I can get better answers from him about a different specialty condition than I get from the doc that specializes in the condition. A really good PCP keeps all that medical school info in mind. A really really good OB, should also be well versed in general medicine. Sounds as if the 1st OB doesn't even have good OB skills, much less any general medicine knowledge. Wishing you a speedy recovery from your section.
Hopeless is offline   Reply With QuoteReply With Quote
Old 01-04-2014, 03:16 PM #2
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Default

I will be setting up an appt with my new PM next week also and will talk to him about this c section. I have already refused to ever see the dr that did the c section again. I have an appt on Tuesday for it also. Will see what they say about it then.
Allanira is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (01-04-2014)
Old 01-04-2014, 06:34 PM #3
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Default

Quote:
Originally Posted by Allanira View Post
I will be setting up an appt with my new PM next week also and will talk to him about this c section. I have already refused to ever see the dr that did the c section again. I have an appt on Tuesday for it also. Will see what they say about it then.
Gosh Allanira, I am so sorry hon. Good grief, as if just having a baby via C isn't hard enough, CRPS to boot and this idiot. I am so sorry... Please, as I'm sure you are, watch for any signs of infection. Mom is having a hell of a time; is baby boy doing okay? Gosh they are just so precious when they are so new. They grow so QUICK!
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
Vrae is offline   Reply With QuoteReply With Quote
Old 01-05-2014, 08:06 AM #4
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Default

He's doing great Vrea except a bit of a yeast infection on his little bobo. Yeah that dr will never see me again except when I walk down the hall to and from appts. I am cleaning the incision 2x a day with peroxide like the good dr said to do and watching closely for signs of infection. I put almost half a tube of bacitracin on it also lol. Then cover it well to make sure it stays dry, clean and not chafed by my clothes. With the preggo hormones leaving I am REALLY feeling my CRPS again. I go tomorrow for my VA C&P exam then Tuesday to have this checked again. Then I get to call up my new PM dr and get started on treatment. Good thing I am already storing up the BM for this little goober. That way he still gets what he needs from me while I start on whatever this new dr puts me on.
Allanira is offline   Reply With QuoteReply With Quote
Old 01-05-2014, 01:05 PM #5
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Well done on the BM storage Allanira, that's a really good idea. You've put your little guy first every step of the way with this, I'm glad you'll be getting started on some pain relief for yourself very soon!

Glad you gave that idiot doc a good punt over a high wall. Grr.

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
Old 01-05-2014, 08:35 PM #6
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Lottie Lottie is offline
Member
 
Join Date: Nov 2013
Location: United States
Posts: 363
10 yr Member
Default

Well done giving your baby THE BEST !! It takes love and commitment to breastfeed when you are coping with your own bodies needs. Great work!
__________________
1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
Lottie is offline   Reply With QuoteReply With Quote
Old 01-06-2014, 12:14 AM #7
Vrae's Avatar
Vrae Vrae is offline
Member
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Vrae Vrae is offline
Member
Vrae's Avatar
 
Join Date: Apr 2011
Location: Denver
Posts: 703
10 yr Member
Default

Quote:
Originally Posted by Allanira View Post
He's doing great Vrea except a bit of a yeast infection on his little bobo. Yeah that dr will never see me again except when I walk down the hall to and from appts. I am cleaning the incision 2x a day with peroxide like the good dr said to do and watching closely for signs of infection. I put almost half a tube of bacitracin on it also lol. Then cover it well to make sure it stays dry, clean and not chafed by my clothes. With the preggo hormones leaving I am REALLY feeling my CRPS again. I go tomorrow for my VA C&P exam then Tuesday to have this checked again. Then I get to call up my new PM dr and get started on treatment. Good thing I am already storing up the BM for this little goober. That way he still gets what he needs from me while I start on whatever this new dr puts me on.
Sounds like you are doing as much as any anyone can. Good job on the dressing changes / wound care!

I did that too with breast milk and froze it, once upon a time a LONG (25 yrs) ago. It worked out good. I just pumped like crazy and the hospital gave me tons of small glass sterile jars. Popped them in warm water to thaw. Did six weeks worth.

So sorry to hear how the CRPS is rearing its head. I find it fascinating that your symptoms have been less while pregnant and how mine are so bad during the monthly cycle. I swear there is a HUGE hormone connection.

I wonder if you put yogurt on the yeast if that would help? Just a thought. Anywho, glad he is doing well! And I hope each day you are feeling better!
__________________
CRPS II Full Body via L5-S1 Discectomy Surgery in 2004
Symptoms started upon waking from surgery in right foot/leg, mirrored to left foot/leg and then EVERYWHERE else.

Vision without action is a daydream. Action without vision is a nightmare. Japanese proverb,
Vrae is offline   Reply With QuoteReply With Quote
Old 01-14-2014, 09:43 PM #8
moosey2me's Avatar
moosey2me moosey2me is offline
Member
 
Join Date: Nov 2013
Location: Gloversville NY
Posts: 252
10 yr Member
moosey2me moosey2me is offline
Member
moosey2me's Avatar
 
Join Date: Nov 2013
Location: Gloversville NY
Posts: 252
10 yr Member
Default

Quote:
Originally Posted by Allanira View Post
So I went and finally got the staples removed yesterday by the same dr that did my c section. ? I swear this dr is incompetent. I still have massive bruising on legs and belly. He put on steri strips and those immediately started coming off at the bottom. So now I have an open incision that I had to bandage up. I tried to tell him to numb me before taking out the staples and he ignored me. I told him repeatedly I have CRPS and he gave me a blank look. I will be filing a complaint today about how he's "taken care" of me. I also have to go back in and have something done about this incision being open and bleeding again. I went in yesterday about it still bleeding on day 10. Now its day 11 and I still have the bleeding and an open wound. Ugh the only thing he's gotten right was counting all the surgical instruments and gauze before closing me up. Well and that my son is alive and well after he was born. Wish me luck. If I don't get some satisfaction from him today I may seriously consider a malpractice suet on him.
Oh my goodness..I sure hope you do keep ontop of this..We all worry about one another..Congrads..too..
moosey2me is offline   Reply With QuoteReply With Quote
Old 01-19-2014, 11:21 AM #9
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Default

The incision finally healed. With the stuff I was doing. It is completely closed now. I am back on treatment so no more pumping and storing. I am on Lyrica 75mg 2x a day. I will also be getting a compounded cream with ketamine in it, and a neurological supplement on Monday. My LOs are doing great. The newest will be a month old on the 23rd and he is getting bigger and is happy. I have another PM appt on Feb 13th, and another OB appt on Jan 28th. I can't wait to get rid of this OB Dr. Soon very soon I will be done with them.
Allanira is offline   Reply With QuoteReply With Quote
Old 01-19-2014, 12:02 PM #10
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
Default

Glad to hear the incision has healed cleanly and you are back on the Lyrica with a pain plan...good luck with it all and keep up with the good work

Hope you and your little son are doing well generally and enjoying each other.

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.
Brambledog is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Allanira (01-19-2014)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 08:01 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.