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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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How bad are the blocks? Do they hurt? I will probably get one soon.
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The very first one was attempted by a different Dr. than I have now. He only used x-ray guidance and hit arteries & caused too much bleeding to proceed. (1st & last time with that Dr.). That really scarred me!! I found new P.M. Dr. who used x-ray & ultrasound guidance. I love her as my Dr. and have stayed a patient. I always opt for conscious sedation (versed by IV). It feels like a lot of pressure (hard to describe) and briefly a very uncomfortable feeling but not painful. The versed sort of relaxes me & I trust her now so it's o.k. You can't drive for the rest of the day & I always have a little spotty memory of the next 10-12 hrs.
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist. |
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I don't know that there is a way to cope if you just drop all meds and treatments. This disease just gets worse and worse the longer you have it. Every doctor I have seen tells me that the quicker it is diagnosed and treated the more the damage can be retarded.
I have had CRPS/RSD for 7 years and the best thing I have found is Ketamine infusions. They gave me back my normal pain free life. When I started them 2 yrs after DX, 40% of my body had CRPS and the pain had me bedridden and suicidal. I was on 100mg of MS Contin 2x a day, 40mg of Oxycontin up to 6x a day, a 75mcg Fentynol patch, Lyrica, Clonodine, Neurontin, and Topamax. After 6 months of infusions the pain was back down to the original site and I was able to come off all the meds (with the help of Suboxone). After another 2 infusions even the Suboxone was gone. I went back to work and life went on normally except for that 1 day a month. Don't give up Hun. The place you end up is not pretty. I know feeling like a guinea pig is not fun but you can find what works for you so you can at least manage the pain. Willow May you walk in the eye of your Gods! |
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Thank you for your input & story. So, how many Ketamine infusions over the 6 mo. period? Were you inpatient for them and if so, for how long were you admitted? Did insurance cover any part? So far I'm able to avoid the narcotics except for P.T. Maybe I should wait until it gets that bad?
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist. |
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