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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#11 | ||
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I've had some chills on my left side around my ribs round to my back. Freaks me out because I've had some muscle spasms in my ribs/chest that feel very scary, and I'm afraid the chills will set it off. I hate getting dressed on a cold morning!!!
Really glad to hear your wound is behaving a bit better than it was. Take care of yourself. Bram.
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . Last edited by Brambledog; 01-22-2014 at 04:43 AM. Reason: Muppetry... |
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#12 | ||
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And Hi Tessa, I wanted to thank you for bringing up drs wanting to treat spread aggressively. I thought that's what they wanted to do with spread too, and was surprised when the NP at my pm drs office said to wait until spring to talk about treating my rsd spread. I need to talk to my pm dr next month and ask him to treat is asap. If they don't want to I think I will be seeing a new pm dr asap. I sort of feel like they have given up on me since I've had rsd for over two years and don't qualify for a SCS anymore. I don't think that I'm going to make them much money anymore so they just don't seem to care as much. (maybe I'm wrong, but my gut is saying otherwise.) I'm also going to try to wean off the percs that they are giving me. They say I don't take a high enough dose to have it affect my organs, but I feel sick to my stomach when I take them anymore. They do help with the pain, but at what cost? It's just not worth the risk to me. I hope that new drug gets approved for RSD (Neurondrate (sp?) so that maybe we can all take it and get rid of RSD once and for all. And Nanc, I'm sorry again for getting sidetracked. I wanted to tell you too that when I was healing from my surgical wounds, I felt like a ping pong ball with my drs. None of them could explain the prolonged pain I felt and would pass me on to the next dr until I finally had my pm dr and endo dr say that I probably had rsd spread. Also, that was around the time I got fibromyalgia too. My neurologist confirmed that. I hope that doesn't happen to you, but just be careful to tell all your drs every pain you feel and have them document it, so that you are sure they don't just push you off to the next dr to try to explain your pain. Take care my friends. My thoughts and prayers are with you all, in hopes that you all have a pain free as possible day today. With love, Renee.
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RSD ME . |
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#13 | |||
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"Thanks for this!" says: |
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#14 | ||
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RSD ME . |
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"Thanks for this!" says: | Brambledog (01-22-2014), Nanc (01-22-2014) |
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#15 | |||
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist. |
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"Thanks for this!" says: | zookester (01-22-2014) |
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#16 | |||
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Nanc, are you keeping notes on your symptoms? Please remember your
Vit. C and maybe a heating pad on the site?
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist. |
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"Thanks for this!" says: | Nanc (01-22-2014) |
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#17 | |||
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#18 | |||
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moment? And of course you're still very early from surgery for any heat.
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist. |
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"Thanks for this!" says: | Nanc (01-22-2014) |
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#19 | ||
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Nanc, I love the idea of a really cool heat pack
![]() Hope you're doing ok today x Bram,
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CRPS started in left knee after op in Aug. 2011 Spread to entire left leg and foot, left arm, right foot. Coeliac since 2007. Patella femoral arthritis both knees. Keep smiling! . |
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"Thanks for this!" says: | Nanc (01-22-2014) |
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#20 | |||
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![]() And thanks, I am doing ok. I finally slept this morning, so that helps. Was up again last night with the itching. I think the bacitracin is irritating me now...argh! But I can see that they are drying up even more, so that it good! Having a lot of discomfort in that front incision, still. I am impatient and need to listen to my body and continue to relax ![]() |
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"Thanks for this!" says: | Brambledog (01-22-2014) |
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Thread | Forum | |||
Does CRPS cause severe total body sweats with painful chills? | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
chills--- have you ever noticed this? | Reflex Sympathetic Dystrophy (RSD and CRPS) |