Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-23-2014, 08:23 PM #3
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Nanc Nanc is offline
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Nanc Nanc is offline
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Join Date: Jan 2011
Location: VA
Posts: 975
10 yr Member
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Hey there! Sorry you are dealing with this monster.

That is one of the hardest things, trying to get people to understand or even show empathy. No one will ever have 100% understanding unless they suffer from it. Visit rsdhope.org, there is a lot of great info there. Here is a link to a letter to family and friends. I shared this on Facebook and gave it to some family members to read, it helped.

http://www.rsdhope.org/letter-to-fam...-patients.html

I even ordered some pamphlets from that site to give out. I was having pre-op testing done at a local hospital recently and the nurse never heard of RSD/CRPS, so I gave her a pamphlet. It was too late for it to benefit me, but hopefully it will educate her for the next RSD/CRPS patient that goes in.

Wishing you the best,
Nanc
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Lottie (01-23-2014), RSD ME (01-23-2014)
 


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