Originally Posted by Brambledog

Awful day, after a bad night. Lots of pain, pretty much everywhere, feeling very blue and fed up with it all. No one seems to care how I feel, family being careful but no one asking about it, like they just don't want to go there....crumbs I hate it all. Sitting still makes things burn and ache and hurt, but I can't move about for more than a few minutes before my knees and hips just hurt too much.

Why us, hey? Why not the bad people, the cruel people, the greedy people? Ah, the great unanswerable questions

Take care everyone, hope you're doing better than me today.

Bram.

Originally Posted by Vrae

Oh Bram darling, I/we care… so very much! I do know how you feel though. There was a time when I said to my husband; I know everyone else has just gotten use to my being in pain all the time, but that doesn’t mean that I have. It can seem like they just become oblivious, or apathetic. I’m so sorry hon.

I too have been in the dumps this week. I believe it is days and degrees of tolerance of all things CRPS. The pain can be so devastating. The why’s of it all can be maddening. Try, try, try to keep your thoughts from there. Ahhhh… oooommmmm… okay never mind. Chocolate, stat! Oh Bram, sure wish I could give you a gentle hug. Please know that I really do care, and you’re gonna make it through this! Hang on girl!

Originally Posted by Brambledog

WARNING: Angry rant / pity party.

I don't know what the heck is going on with the weather here in the UK, but there's another storm coming in, the barometer is dropping, and every cripsy bit of me is shouting loudly tonight...

The last couple of days this has been coming on, I've been feeling crappier by the day. My body doesn't know what to do, my temperature regulation is all over the shop - I'm freezing cold, but the heating is right up, my knee is blue cold, my shin is red and hot. My whole left leg is burning from lower back down to the purple corpse-like tips of my toes. My hips and back ache. My original site (left knee) is alternating between fiery hot and icy cold every few minutes. A new region, the left side of my groin FFS, is acting all kinds of crips. My R (unaffected) knee feels hot and sore. My hands ache, my arm skin is hyper sensitive. My side burns, all the way up the side of my neck and into my hairline. My head aches, the skin between my eyes is permanently furrowed with lines from pain. I feel about a hundred years old.

I hate it hate it hate it. My cheerful outlook has deserted me tonight and I just want to burst into tears. Wouldn't do much good, so I'm doing the traditional VENT out to all you kind folk who I know:

A) get it.
B) have experienced this kind of crap and lived through it.
C) give two hoots.
D) aren't going to patronise me.
E) know more than pretty much every single frickin useless doc out there.

Like all of you, my normal persona hides a lot of pain. Tonight the mask is off. This is me. And I want it to stop.

Bram.

Originally Posted by Brambledog

Wel I've lost it. Hip pain is horrific today every move I make, burning and shooting down my leg and around my crappy knee too. Burst into tears after even playing piano made it worse, no relief in any position. Don't know what to do with myself, poor husband and daughter don't know what to say so say very little...I hate this damn disease, it's so awful on a bad day, you just can't put those feelings and emotions into words.

Hope you guys are doing ok, hope someone out there in the research world is pushing hard to find a way of relieving this pain...

Bram.