Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-07-2014, 08:08 AM #1
AndreadePalma AndreadePalma is offline
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I spent most of my adult life in an alternative medicine practice (primarily massage). One night during my worst episode of flames roaring off my arm with a burning cold inside, so bad I could barely breath much less sleep and I grabbed a tube of an extremely pure, high grade, essential oil cream that I used on injured patients at the clinic where I worked. I had no expectations having always used it myself and others for sports injuries and muscle strain etc. But I applied it and the next thing I knew I was waking up in the morning and my intense pain was gone. I'm not going to insist it was the cream because I don't know for sure but I think it was at least a factor. It is quite different than other creams and was also very popular with my patients on their varied injuries.

I haven't yet had a new episode of that magnitude to see if I can duplicate that result.

Anyway, I have a bunch of sample packets that I still have since I had to stop seeing patients when the CRPS hit me. If you want I can send you a couple to see if it helps you. If you're interested let me know where to send them. It wouldn't cost you or me anything since I have them and I have a stamp.
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Old 02-07-2014, 08:47 AM #2
Brambledog Brambledog is offline
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I love essential oils and have a couple of different natural creams that I use too, but they don't really help the pain, but they don't anger my skin and ease the dry soreness a bit. I'd be really interested to know what oils are in the cream, and exactly what the cream is. I'm in the UK, so I might not be able to get it here anyway. I like to give new things a go, after all, you never know...

Bram.

Quote:
Originally Posted by AndreadePalma View Post
I spent most of my adult life in an alternative medicine practice (primarily massage). One night during my worst episode of flames roaring off my arm with a burning cold inside, so bad I could barely breath much less sleep and I grabbed a tube of an extremely pure, high grade, essential oil cream that I used on injured patients at the clinic where I worked. I had no expectations having always used it myself and others for sports injuries and muscle strain etc. But I applied it and the next thing I knew I was waking up in the morning and my intense pain was gone. I'm not going to insist it was the cream because I don't know for sure but I think it was at least a factor. It is quite different than other creams and was also very popular with my patients on their varied injuries.

I haven't yet had a new episode of that magnitude to see if I can duplicate that result.

Anyway, I have a bunch of sample packets that I still have since I had to stop seeing patients when the CRPS hit me. If you want I can send you a couple to see if it helps you. If you're interested let me know where to send them. It wouldn't cost you or me anything since I have them and I have a stamp.
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Old 02-08-2014, 11:48 AM #3
Lottie Lottie is offline
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Andrea -what essential oil is in the cream? ~Lottie
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1999 Chronic spine pain related to Degenerative Disc
Disease,
Sept 2001. C6 / C7 discectomy & fusion.
Jan. 2005 L5/S1 discectomy and Artificial Disc Replacement.
July 2011 removal of broken
.
Artificial Disc Replacement.
Woke up in recovery room with RSD Monster.:
.

Aug 2011 Stabilization of spine at L3/L4/L5.
October 2014 Rheumatoid Arthritis.
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Old 02-09-2014, 08:22 AM #4
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Quote:
Originally Posted by alt1268 View Post
Can you tell me what else you are taking? I had to end up on a combo of medications. Dialudid though is very short acting. You get the high then it drops you. And most of the time doesn't touch the pain unless you take it continuously.

I ended up on a antidepressant (which helps for pain and sleep). A pain patch. Break through pain med. neurontin. And clonidine.

Like I said usually it takes a combo of meds.
I'd be interested to know as well. Usually it takes a combination to get things managed. Dilaudid is a pretty heavy pain med, but is short acting. I know my doc is trying to slowly change pain meds and go up in strength, because going to strongest early on leaves no room to increase over the years. That is where other medications come in.

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If you're using a tablet like me it won't let you. Silly I know .
^ What she said... pretty annoying.
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Old 02-10-2014, 12:45 PM #5
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sorry to hear about your suffering, I have gone thru hell with my meds before because my body rejects most of them. I recently tried something new for me called CBD oil. The one I use is made from hemp and has no THC, it has given me relief beyond my wildest dreams and has even allowed me to drop 2 other meds. please talk to your doc first, mine wanted me to try a new pill that has CBD and THC for pain relief which I refused, I can't take THC. I ordered my oil from CIBDEX, if that helps. No matter what you try I hope you get the relief you need.
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Old 02-12-2014, 10:26 PM #6
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Hi Heidi,

You have a lot to deal with, so hope you give yourself credit for what you are doing! Exhausting! I hope your doc tries a new regimen of medication and is more understanding too. I developed sensitivities to many narcotics and other meds and had/have to change every so often... it is a process of trial and error for sure until you really find relief..

Praying for you!!
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