[Vrae]

I thought.. wow, I know a few nurses and perhaps they would be interested. Thought I would share here so that if you know a practicing nurse, perhaps you can share this with them.

http://nursing.advanceweb.com/Contin...-Syndrome.aspx

[Brambledog]

Really, really good summary of CRPS. Refreshingly so! Thanks Vrae

Bram x

[zookester]

lol.. that is the same one I sent to Nanc in hopes that it might help her win her appeal for LTD.

It has proven really helpful for family members who are truly interested in learning more about it and how they can help.

[AZ-Di]

Well, MANY THANKS to both Vrae & Zoo.

I must have missed this along the way, so I'm happy to see it.

Most of us know this stuff, but as we know the medical community usually
doesn't. This validates the true nature of this rotten disease. The only thing
I found wrong is that it mentions using ice.
I printed it & intend to share.

I go in for my 22nd nerve block today and usually all goes pretty well,
I have an awesome P.M. thankfully. I'm pretty sedated for remainder of day.
Could use some hugs though ??

[zookester]

Originally Posted by AZ-Di

Well, MANY THANKS to both Vrae & Zoo.

I must have missed this along the way, so I'm happy to see it.

Most of us know this stuff, but as we know the medical community usually
doesn't. This validates the true nature of this rotten disease. The only thing
I found wrong is that it mentions using ice.
I printed it & intend to share.

I go in for my 22nd nerve block today and usually all goes pretty well,
I have an awesome P.M. thankfully. I'm pretty sedated for remainder of day.
Could use some hugs though ??

[Brambledog]

AzDi, you always always deserve the hugs



That's a group hug hugged by two hugs. Awesome.

Bram x

[Vrae]

Originally Posted by AZ-Di

The only thing I found wrong is that it mentions using ice.
I go in for my 22nd nerve block today and usually all goes pretty well,
I have an awesome P.M. thankfully. I'm pretty sedated for remainder of day.
Could use some hugs though ??

ut oh... I didn't catch that about the ice Di! Thank you for pointing that out. Good luck today with your block! and one last GREAT BIG Hope you get some good rest!

[finz]

Thank you very much for that link, Vrae.

I was disappointed with the casual recommendation about the use of ice. I think she should have stressed how controversial the use of ice is in CRPS patients, that it can cause tissue damage, more nerve damage, and rebound pain. I'm an ice user, it works for me. I'll never know though, if my early excessive use of ice packs when I didn't have other pain management options available, did damage that allowed CRPS to develop from my TOS. I wish she had said something more like, "While a few CRPS patient's find cold therapy effective, it is contraindicated for most CRPS patients because it can cause rebound pain and additional damage. This is important to know because ice packs should not be routinely be used as a part of a PT program or be offered to CRPS patients who might not yet be aware themselves of the damage that cold therapy can do."

I really liked the article. Even though it was designed to educate nurses new to the study of CRPS, I thought it covered most of the points that I want family and friend to know and understand. I appreciate that it was in "layman's terms" and not too technical.

I'll definitely be printing it out and passing it out !

[Vrae]

Originally Posted by finz

Thank you very much for that link, Vrae.

I was disappointed with the casual recommendation about the use of ice. I think she should have stressed how controversial the use of ice is in CRPS patients, that it can cause tissue damage, more nerve damage, and rebound pain. I'm an ice user, it works for me. I'll never know though, if my early excessive use of ice packs when I didn't have other pain management options available, did damage that allowed CRPS to develop from my TOS. I wish she had said something more like, "While a few CRPS patient's find cold therapy effective, it is contraindicated for most CRPS patients because it can cause rebound pain and additional damage. This is important to know because ice packs should not be routinely be used as a part of a PT program or be offered to CRPS patients who might not yet be aware themselves of the damage that cold therapy can do."

I really liked the article. Even though it was designed to educate nurses new to the study of CRPS, I thought it covered most of the points that I want family and friend to know and understand. I appreciate that it was in "layman's terms" and not too technical.

I'll definitely be printing it out and passing it out !

I think we should grade it and send it back to the instructor, with love from the NT RSD/CRPS Group lol. oh I'm in a sarcastic mood hu? Please forgive me.

I honestly missed the part about the ice before I posted it. Thanks for your feedback!

[Lottie]

Az-di best wishes that the block goes smoothly. I always cry like a big baby during mine.SO many procedures and it never gets easier. Hugs