Hi lonewolf (I'm loving the name!)

Good advice here, as usual lol. Get a new doc who doesn't make you feel like this. You have enough to deal with already. As Sage said, be your own best advocate. Learn as much as you can about CRPS from reputable sites, and steer clear of the photographs as they show extreme cases and just scare you rigid.

It doesn't matter if the CRPS specialist is a neurologist or a pain specialist - just that they have recent experience with treating and managing CRPS, and most importantly that they treat you like a human being and not a tiresome little statistic cluttering up their office... You might have to see a few before you find one you like, but stick with it and don't let any fools tell you any of this is in your head or NOT CRPS. Knowledge is power. Learn lots and then you can confidently and politely say, I'm sorry, but I don't think that's a good idea for me. Bye.

Good luck and keep posting. We do understand how you feel

Bram.

You know what hurts, You know how You will react to certain situations. They aren't mind readers. You have to tell them what you're going through. They are human not God. Even if they have the gods compllex going on like your PCP they aren't. Don't let them make you feel like they are supreme beings. Fight for the care you need. I've been to 2 PM Drs so far the first only did injections, and he had a god complex. The one I'm going to now does both injections and meds. Oh yeah what Sage meant by no injections is things like cortisone injections. Now I've had a lumbar sympathetic block done and it was wonderful for a couple days. Research is your best friend with this. I've done a ton of research since April. Just keep looking for information. If a dr treats me like I'm a wast of good oxigen I tell them goodbye. This PM Dr im going to listens, and actually believes me. Thats a very important part of why I'm going back. Don't go to the nearest PM dr out of convenience. Go to the one that listens and knows this beast. There are good ones out there. You just have to weed out the jerks. Keep positive, and smiling.

Hi LW,

I'm sorry that you are dealing with this.

I don't think it's necessary to have a PCP who is an expert in CRPS, as long as you have a pain mgt doc who is.

I do think it's necessary to have a PCP who admits what he doesn't know and who works to maximize your health. If he disagrees with a specialist, he should have an explanation for that and a plan to determine the correct dx. If he disagrees with a specialist he sent you to, he should have a damned good explanation for that !

Many of us have had our concerns minimized, dealt with snide comments implying we are just drug seekers, or been told "it's all in our head." Find solace in the fact that you have some professionals on your medical team who "get it" and work to eliminate those who aren't trying to help you.

Thanks for all your comments It has helped to know I'm not alone.
These past 18 months have been up & down every time I turn around.
I'm not worrying anymore about what my pcp thinks about my CRPS
my pain Dr. says I have CRPS & she is my Dr. for it, not my pcp. Only
thing he has to do is my blood pressure/high heart rate. I am finding
alot of info that is helping me from all you.