Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-06-2014, 07:15 AM #8
Brambledog Brambledog is offline
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Join Date: Jul 2012
Location: England
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Brambledog Brambledog is offline
Senior Member
 
Join Date: Jul 2012
Location: England
Posts: 1,122
10 yr Member
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Hi lonewolf (I'm loving the name!)

Good advice here, as usual lol. Get a new doc who doesn't make you feel like this. You have enough to deal with already. As Sage said, be your own best advocate. Learn as much as you can about CRPS from reputable sites, and steer clear of the photographs as they show extreme cases and just scare you rigid.

It doesn't matter if the CRPS specialist is a neurologist or a pain specialist - just that they have recent experience with treating and managing CRPS, and most importantly that they treat you like a human being and not a tiresome little statistic cluttering up their office... You might have to see a few before you find one you like, but stick with it and don't let any fools tell you any of this is in your head or NOT CRPS. Knowledge is power. Learn lots and then you can confidently and politely say, I'm sorry, but I don't think that's a good idea for me. Bye.

Good luck and keep posting. We do understand how you feel

Bram.
__________________
CRPS started in left knee after op in Aug. 2011
Spread to entire left leg and foot, left arm, right foot.

Coeliac since 2007.
Patella femoral arthritis both knees.

Keep smiling!
.

Last edited by Brambledog; 02-06-2014 at 07:17 AM. Reason: Omg the muppetry today is flowing like wine... ;-)
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