Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-22-2007, 04:02 PM #21
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.....but if she had a seizure and passed out in the bath tub OR hit her head on the bath tub. I know I'm not allowed to have a bath or anything on my own because the pain has caused blackouts with me and also I have no muscles and if I slip under the water I can't get my head out of the water again.

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Old 05-22-2007, 05:19 PM #22
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Hi,
I was on methadone for a long time. I passed out once that I know of. I was lucky that it happened at work and my coworker called 911. But there are other times that I have done things and lost periods of time. I remember none of it. Only what my family told me. I no longer take methadone and never will again. Yes it helped great with the pain, and I could work as long as I took it. But it wasn't worth the danger it put me in. As for suicide, I think about it everyday, but I could never do that to my family. I love my grandchildren too much. They are the reason I try to keep going.

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Old 05-22-2007, 07:55 PM #23
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hey sue
i can empathise. it is always something that sits like a gremlin in the back of my mind - a way that will get rid of the pain and fear and stupid RSD generally.

But I'm just too damn curious about tomorrow - who knows? it could be a good day, a great day or a dreadful day.. but unless you see it you'll never know.

Also, though my brain may consider it - at heart, I will NEVER let the RSD beat me. It is a part of me but I am in CONTROL and it will NEVER be. There are some parts of us all that RSD can never touch, our hearts, our loves and our spirits. Pain may damage how we relate to them- but it can't take them away. I still love my animals - yet I hate them for their fur that burns right through me if I stroke them- but I will never stop loving them.

......and I guess, as I said earlier, I am just far too curious about the future to wish myself free of it, I just wish that I was RSD free in it!

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