Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-18-2014, 03:17 PM #1
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AZ-Di AZ-Di is offline
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Location: Arizona
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AZ-Di AZ-Di is offline
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Join Date: Mar 2013
Location: Arizona
Posts: 453
10 yr Member
Default Letter to loved ones

I just put this in a reply to heather g. Sorry heather, this is slightly off topic of
what your friends did to you.
Many of you have read the "letter to loved ones" provided by Kevscar.
it is so very well written & said.

I have wanted for months to send this to loved ones, especially to my
grown kids.
I'm afraid they'd say or think "jeez, you didn't need to "go off" like that.
Since I've not been working they seem to have an attitude of how nice it must be
to be acting like I'm retired early (not exact words).
In different conversations, one of them points out hypothetical jobs I
could do, how she has Crohn's disease (and works). I so much want to point out there's specific medicine to keep that in remission.
RSD does not have one.
I still try & do all I can for them & grandkids. I don't complain to them when i can't or even tell them how that is. I just don't do it.
Maybe I just don't have the nerve (bad pun) to speak up.
Any comments??
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RSD/CRPS and contracture of left hand and arm after surgery for broken wrist.
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"Thanks for this!" says:
eevo61 (02-20-2014), moosey2me (02-18-2014), PamelaJune (02-19-2014), Russell (02-21-2014)
 


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