Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-22-2014, 01:36 AM #1
Kevscar
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Default UK sufferers

Are you aware that the UK Government are planning to sell your medical Records, you will have no say in who it goes to or what they do with it. Once it's done there is no way you can withdraw it or do anything about it. Your only choice is to opt out before it happens, http://optout.care-data.info/
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Old 02-22-2014, 05:09 AM #2
Brambledog Brambledog is offline
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Yes I do know. There's been so much outcry at the ability they would have to sell our info to insurance companies, med suppliers etc that it has now been shelved for 6 months. 38 degrees are doing a major campaign against it, you can lend your voice to them to help fight it, and also opt out via their site.

Hopefully the protection side of things will be tightened up before it comes anywhere near law...

Bram.
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Old 02-22-2014, 09:22 AM #3
Kevscar
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trouble is you cannot trust our politicians to keep their word and not change things later on so I'm opting out
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Old 02-22-2014, 11:20 AM #4
Neurochic Neurochic is offline
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This NHS project doesn't apply in the whole of the UK. It is not applicable anywhere other than in England.

Be aware that even if you do opt out, there are extensive lists of exceptions to the opt out where your data can still be shared and used. You may want to look at all of these just so that you are fully aware of the limits to your opt-out.

Last edited by Neurochic; 02-22-2014 at 12:58 PM. Reason: Adding info
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Old 02-22-2014, 01:46 PM #5
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Whew,
At least here we have the HIPA law which anyone wanting medical info must contact the person first for approval or not...
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