Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-20-2014, 11:27 AM #1
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Confused Battery was repositioned how long will take to recovered? Again

Hello everybody well las January had finally my battery for my scs repositioned from my buttocks to my abdomen the reason for that change took a year for my md to finally decide to do something with my back and leg pain on my surgical sites,was tired to complaint and not been able to work because secondary issues the point is now is in my abdomen I will try again I had crps on my right foot possible also on my right arm and back but because is wc md is just focusing on my foot but since the change my back and left leg feels more relief but I wondering how long will take to heal my previous surgery game so many problems I still had no been able to be back to work does any one have the repositioning done and how well it work and how fast is the recovery? I still can get used to been like this and my anxiety and insomnia got increase because I can be at least a little bit normal had so many flare ups and I'm really desperate now even with the scs unit I still have pain on my injury foot right one because I have bone pain due to a loss of cartilage and scs only relief my nerve pain not the bone rubbing every time I walk please anyone know if the recovery is the same comparing with the original positioning ,I'm really frustrating!
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Old 02-22-2014, 02:49 PM #2
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Default only 3 years

http://m.youtube.com/#/watch?v=6_Nzh...feature=relmfu

Please watch and listen to this RSDSA update report on treatments, especially the segment which notes that after 3 years there is NO difference in pain levels between having a SCS and not having a SCS.

Simply put, SCS work for 3 years.

Best wishes.

Last edited by Steelworker; 02-22-2014 at 02:51 PM. Reason: typo
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Old 02-22-2014, 02:58 PM #3
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Default

I've never had the battery repositioned but I had it taken out. I had the SCS unit moved around and taken out as well. 3 surgeries total. The 2nd time was agony 6 wks off of work. I know that's no where near yours but I was told it was "Tissue Trauma". Fancy word for your body not healing.

I think bone pain ranks way up at the top when it come to ranking types of pain. I'm sorry you have an injury AND rsd. Either one is bad enough alone. My heels, then my feet, got fun over by an MRI machine (yeah I know weird huh) so I know about bone pain and the reason I got RSD. The SCS took away the pain in the left foot but never in the right. Right after the first surgery mine spread up my entire leg.

I hope you heel and the SCS helps take 1 of your pains away so you can handle the other. Good luck to you
Heather
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RSD since 8/2005
Originally in left and right foot
Spread in 2006 and Jan 2014
Both legs, arms.
Chronic pain going back to 1992

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Old 02-23-2014, 09:42 AM #4
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I am sorry you are struggling so much! I had two SCS's (cervical & thoracic) implanted in June 2011 and just had them removed in January 2014. Five months after initial implant, I had a revision on the thoracic SCS leads (swapped out for paddle leads) and that battery moved from the butt/hip to my front/side (near my ribcage). I think the recovery time they told me was the typical 6-8 weeks, but the abdominal area is looser and has softer tissue which makes it more sensitive...it takes a little longer to heal. It felt better when the battery was moved, but then I had issues later on...it got twisted and hurt. I had it all removed because that battery pain and my thoracic paddles leads migrated. The effectiveness wore off and they could not get the stimulation to reach my feet. I was having more pain in the front surgical area when they removed that battery, it hurt a lot more than the other three incisions. The dr told me to give it several months because of the looser, softer tissue there vs. the back, and where the battery pocket was located. If you are having issues and increased pain, you need to let your dr know.

There are many people on NT who have had success with SCS's for much longer than three years, so don't let that discourage you. A revision is not failure, things happen and our bodies change (especially with RSD/CRPS). If I had to go back in time, I would do it all over again. They helped me to work another year and a half...I was losing use of my hands prior to implantation. The constant stimulation helped with desensitization, coloring and got my frozen shoulder moving.

I hope you will improve soon and that you can get some relief iin your right foot!
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Old 03-04-2014, 04:55 PM #5
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Default Had relief after reposition of batery but still pain on original site

My pain got little better on my original battery pocket side on my buttocks now in the abdomen is still healing but if my scs signal is low to avoid pain in the surgical area that was recommended by my rep and helped before now I felt so much pain in my old insition site in buttocks such a pain thru my whole leg that I did not have it until my original surgery on jan 2013 my new reposition was on jean 2014a year later I though pain will be gone but is worst and the dr is ignoring that because of the fact that my wc injury was originally on my right foot and ankle then crps came with so everywhere else does not count to the insurance ,yes is hard to deal with sequels of discomfort and pain try my best to keep up but is so so hard and confusing,desperate and afraid sometimes that things are not getting better I tried my best but is hard so hard I know you all understand but when you had a normal life be like this changes you so much and hurt not only fiscally mentally and emotionally thanks to you all sometimes I feel that I'm battle alone but I know you guys are outer for people like me,sorry is one of my bad days but thanks for being with me you are also in my prayers
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