Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-18-2014, 03:05 PM #11
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Thanks Vrae for your kind words. I'm sorry you have this problem too. I hope it goes away and really soon. Thanks again for caring.
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Old 03-18-2014, 03:10 PM #12
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Emily, thank you for your caring too. I sometimes think my family and drs think I'm nuts too, but the ringing and hearing loss is unfortunately all too real. Just like my rsd is. I think they are starting to realize that now that my GP has diagnosed as tinitus (sp?) but I am still going to see an ENT dr. I think I'm going to wait until after mygallbladder surgery on Monday though. I'm just trying to rest right now and am so overwhelmed with everything that's going on in my life. I'm just so tired physicially and mentally. I can't wait for Spring so I can enjoy the warmer weather! Thanks again for caring. I hope your ringing goes away soon too.
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Old 03-20-2014, 08:25 PM #13
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Hi Renee, I used to get ringing when I was on the Fentanyl patch. Any chance yours could be related to a med? Sorry, I know. Probably not much help.
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Old 03-20-2014, 10:00 PM #14
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Hi Lottie, I appreciate your caring and trying to help. I wish that were the reason, but I'm not on the Fentanyl patch. I've been trying to ask my pm dr about switching to something like that though, but he keeps cancelling my monthly appts with me the last two times I was supposed to see him and had me see a NP instead. The NP doesn't seem to get rsd so I am waiting until next month when hopefully he will see me so I can ask. Thanks again for trying to help though. It means alot to me. You're a good friend.
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Old 03-21-2014, 11:57 AM #15
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I have the ringing ears too, and in the left ear Meniere's Disease.

When the meniere's was first rearin its ugly head in the left ear. I would go into the worst spins ever! It would start with a dull roaring sound and build into a loud roar. It would be a couple of days of that.....then the spinning would start. Vertigo!

I couldnt walk, and most times couldnt even crawl. So I needed help getting to the bathroom and back to the bed. It is by far one of the worst things....besides RSD that I have ever experienced. I sure hope you are not having meniere's.
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Old 03-21-2014, 01:36 PM #16
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Thanks Allen. My gp said I may have menieres, bu tot wait until after my gallbladder surger yto see a ENT dr. I'm sorry you have this. I appreciate you sharing your experience with me though. I hope I don't have it, but we will see. Take care my friend and I hope you feel better soon.
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Old 03-23-2014, 05:27 AM #17
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I can hardly believe that nobody mentioned this.
It's a HUGE SIDE EFFECT OF NSAIDS!!
cut them down or stop them, (after all they don't do much for RSD).

Once, my doctor refused (to my ins.. nurse) a blood test that would tell that I was taking my meds.
I constantly complained about tinittis.

He told her to shut up, I've got the side effect!

So, please cut down on the NSAIDS~!

pete


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Old 03-23-2014, 12:50 PM #18
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Hi ASB, Thanks for the info, but please excuse my ignorance, what are NSAIDS? Thanks again.
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Old 03-23-2014, 01:37 PM #19
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Quote:
Originally Posted by RSD RENEE View Post
Hi ASB, Thanks for the info, but please excuse my ignorance, what are NSAIDS? Thanks again.

Non steroidal anti inflammatory drugs. Just another example of a short term band-aid with negative long term effects. Google away
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Old 03-25-2014, 03:01 AM #20
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Wow Renee, I hope you dont have Menieres. It is terrible when it starts causing vertigo. The vertigo would come and go for 10 years, and for a long time I didnt know when it was going to happen.

Ive been stuck on the side of the road because I was spinning so bad I couldnt even see straight enough to drive. Would sit there for hours until I could drive again, and probably shouldnt have. It was before cell phones...it sucked!

I will keep you in my prayers fer sure!
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