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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Senior Member
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I was wondering if anyone has experienced ringing in their ears, loss of hearing in their ears and mild pain when the ear is touched.
I have had this problem for about two weeks. The ringing is getting louder and comes and goes. It's only in my right ear. The partial loss of hearing comes and goes too only in that ear. And when the dr checked my ears it was tender to the touch. I saw my GP about it last week because I don't want to have my surgery for my gallbladder in two weeks if there is a problem with my head (well lets say my ears, because I already know there is a problem with my head lol) and he said it looks clear and that it might be tenitis (spelling?) and that after my surgery I should see an ear nose and throat specialist to see if it is something else that starts with an M. (I can't remember now what it was called). I asked him what caused this and he said no one knows and they really can't do much about it. I'm wondering if I should get a second opinion. If anyone has had this problem and has an idea of what they think is going on, I would really appreciate your input. Thanks.
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RSD ME . |
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"Thanks for this!" says: | eevo61 (03-23-2014) |
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#2 | |||
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I have it too, but not along with the ear sensitivity you're describing. Nor the specificity of one ear over the other. More of a general high frequency ringing that is always there if I pay attention. Tinnititus is another one of those conditions the medical field doesn't have a definitive answer for - there are many potential causes. The fact that it's specific to one ear, and the mild physical pain, would lead me to do more research and seek a second opinion. And the opinions of everyone here of course! Sorry I couldn't be of more help. |
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#3 | ||
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Senior Member
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Thanks Vision. I think I am going to seek a second opinion. I appreciate your advice. Take care my friend.
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RSD ME . |
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#4 | |||
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Hey Renee! I have bad ringing in my ears (tinnitus) and have for several years. Mine is in both ears. I went to an ENT (Ear, Nose & Throat dr) to get them checked. Everything looked fine to him. He gave me the number of a tinnitus clinic about an hour away. He said they couldn't get rid of it, they would basically teach me how to live with it...or tolerate it. My ears are very sensitive to sounds, especially really loud or high pitched. I figured that sensitivity in one of them is because my little brother kicked me in my head, right on my ear (ouch!) when we were kids (it was completely an accident).
Several years ago I was getting these really bad sharp, shooting pains in both ears. My ENT tried putting tubes in and I had to get them out pretty soon afterwards. The pain was awful. He could not understand why I hurt so bad, even when he took the tubes out. We were sitting there talking afterwards and the tears were rolling down my face. We figured that it had to do something with RSD. Oh, I do have some hearing loss in one ear...but that could be from that kick ![]() If I were you, I would go see an ENT to confirm that it is not something else going on. Nanc ![]() |
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#5 | ||
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Junior Member
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I recently have had another RSD issue with my head and this time it's the sound of an electrical power plant between my ears. I plugged my ears and discovered it wasn't from anything outside it is in my brain. I figured it was a form of tinnitus. I read up on it and medication can cause it and so can RSD. I just added that to my list of head issues. Nerves in one side of my face burn on my ear, eye, cheek and nose and upper lip. The other side I have pain in the back of my head over the top to deep behind my eye and the temple in y head that feels vascular. Then there is the whole neck and head radiating heat issue, sweating. I developed weird lights in the corner of my eye like worms and then I had firefly display that was interesting. I of course have a lot of emotional roller coaster issues mostly due to the trauma doctors and insurance companies put me through. Then there is the icing after sweating, the dark red nose and cold face stuff I get. Regular nightmare. SSD thinks I can work like that. What a nightmare this stuff is. I tried homeopathic ear drops for tinnitus but it didn't help. It's worse when there is no background noise. Try a fan to sleep. It of course has to be pointed away from me. I also have trouble with noise sometimes, it hurts and irritates me. I hate it when that symptom crops up, I can't stand 2 people talking or the TV noise and can't be in crowds. The only reprieve? RSD moves around and different symptoms bother me throughout the day, sometimes anyways. Good luck with that, maybe it will clear up on its own. I don't think there is an effective treatment for it except distracting noise. Wear ear plugs in noise and don't let your hearing get damaged further.
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#6 | ||
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Senior Member
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Thanks for sharing your experience with Tenitis with me Jerie. I had a feeling RSD could cause this and just looked it up to confirm. I wasn't surprised. RSD sucks. I hate it. I also have had lightning bug like lights flashing in my right eye. It was only one time a few years ago. It lasted for about a minute and never happened again. I saw my eye dr about it and she said my retina was not torn so not to worry about it, but thought it could also be rsd related. I don't think they can do much about it, but I found it interesting that you had this happen to you too. You are the first one I spoke to who has also had this experience. I think it's rsd related too. It seems to attack everything. It's very scary but like you said rsd moves around so different symptoms bother me throughout the day. Except for the constant pain in my rsd wrist and hands, feet and stomach. Geez that's almost my whole body. Its just so sad. Well thanks for your input Jerie. I really appreciate it. Knowledge is power. I hope you have a good night.
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RSD ME . |
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"Thanks for this!" says: | eevo61 (03-18-2014) |
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#7 | ||
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Senior Member
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Thanks Nanc for the great advice. I think I am going to see an ENT to get a second opinion. I hope it's nothing more serious then tennitis. I just looked up RSD and Tenitis and from what I understood that there is a relation of the two. I had a feeling this was the case. Although my drs don't ever seem to want to acknowledge the extent of damage that RSD can cause, I know my body and what RSD has done to it. Hopefully the ENT dr can at the very least minimize the ringing. It's driving me batty. Thanks again for caring and I hope you have a painfree and peaceful night.
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RSD ME . |
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#8 | |||
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![]() Hope you can get some relief soon. I know it is so irritating. It drives me so crazy!! I end up listening to my iPod when I go to bed, very low of course! |
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#9 | ||
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Junior Member
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Renee, I thought I was going crazy and so did my family when I told them my ears hurt and burn! Oh and the constant " huh?" " what did you say?" Have been working their nerves lol.. whats weird is it does come and go and every time I have a drs appointment scheduled it comes back so I feel like if I go in they'll think I am nuts lol.. I would go to the ENT ( ears nose and throat) specialist. I am going to. I don't think they will be able to give answers ( seeing how anything wrong since ive been diagnosed with rsd has been able to be explained lol) it sucks I know I am right there with you!! Hopefully you get an answer!! |
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"Thanks for this!" says: | RSD ME (03-18-2014) |
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#10 | ||
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Senior Member
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Thanks Vrae for your kind words. I'm sorry you have this problem too. I hope it goes away and really soon. Thanks again for caring.
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RSD ME . |
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