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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Junior Member
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I just would like to let everyone know Im still here and if you have emailed me or I have said I was going to get back to you so what is happening so everyone knows......My son got hurt bad last monday at high school. He got droped on his sdoulder from some kids we have had problems with since 5th grade and nothing ever happens and it really still didnt IM FALLING I HAVE NO HELP AND i WASNT WELL BEFORE THIS THINGS WERENT GOING GOOD BUT THIS IM FALLING VERY FAST I dont know I have to keep it together on top of full body RSD no sleep for days pain level is I cant even tell anyone and yesterday he y son saw our regular dr she sending him to an shoullder surgeon I spent hours the first day in the hopsital Xrays dont look good he is in a sling on two different pain meds and still not sleeping and he has never been on pain meds and he has a heart condtion that they are finally trying medication for to help and he has finals soon its his right shoulder and he is right handed and he was helping me because I was well emough to hardly type.MY EYES HAVE BEEN SEEING FUNNY IM GETTING STIFF AND MY BRAIN CANT PUT THINGS TOGETHER WTO EMAIL TYPE WRITE ANYTHING I GOT VERY SICK AT HIS 15TH BIRTHDAY the end of last month iM FALLING VERY FAST AND VERY HARD NO NO NO NO NO HELP HELP !! ! ! !! ! ! I will be back I didnt want people to think I didnt care and I am falling..........Thank you I WILL BE HERE SOON I WILL TRY IN A COUPLE OF DAYS .EVERYONE HAS BEEN HELPFUL FOR ME IM FALLING TO THR POINT I FIND MYSELF BREAKING DOWN I CANT HE COMES BEFORE MY HEALTH NO MATTER WHAT...............
thank you eveyone and InHisHands, and well you know who you are thank you for all the help last time I couldnt of kept going IM TRYING TO KEEP FIGHTING
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Gentle Hugs Karen . |
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#2 | ||
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Junior Member
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Bless your heart, we are here for you. I swear the hardest job i've ever had is being a parent. You and your family are in our prayers.
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Life is not measured by the number of breaths we take, but by the moments that take our breath away . |
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#3 | |||
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Member
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Karen,\
Hang in there. I know easier said than done. From a parent who had kids that did everything possible to kill themselves (or me from heart attacks)lol that it wil be ok. the joys of having the youngs ability to recoop. My one daughter took a fall after we moved to germany, (I told her she couldn't get some candy from the top of the frige, she did anyway, and slipped off the counter). I had a 2 months old baby I was breast feeding, and son taking the bus to get home from school, and hubby had just left 1:00 am for field manuivers) took her to the local base clinic and they said ruptured spleen and bleeding internally. had to drive to american hospital, (I didn't know how to drive in germany or where I was going). got her to the american hospital, the examined her, sent her to german hospital for test. the german doc gave me the results in a folder and said I'm so sorry. Went back to american hospital, surgeon looked at her again and said no surgery. the blood was being absorbed back into the body. If he takes spleen out there is a 50% chance she would die of an infection before she hit 13. (she was 9)..everything Ok. during this time, I left my son locked out of the house, and my new baby with a neighbor I didn't know with no milk or anything. didn't even know how to get ahold of hubby in the field. He made it in late that nite by stilling a jeep and driving himself to the hospital. (no he didn't get in trouble) move to 1st day of college. doing a play, playing she was dying. I thought WOW..she's awsom. She comes home because her belly hurts. doctors next morning.....back and forth 3 times due to pain. Poc finally thing append. get her to hospital...open her up..no append. rutptured Ovarian cyst, and her belly is full of blood. they cleaned her up, kept her in a light coma for 3 days. that's just one of my kids. I've got two others...lol they have all made it to adult hood. Just want you to know that they do heal fast, and even with surgery, it hurts us more than it does them. Hugs Mary ![]() |
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#4 | ||
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Hang in there Sweetie!!!
![]() ![]() ![]() ![]() I know you have been having a really rough time. I am thinking of you and praying for you, and I am glad I have been a small help to you! Sending many (((( pain free hugs )))) ![]() ![]() ![]() ![]() Keep going, you can do it! ![]() |
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#5 | ||
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((((((Karen)))))),
I'm so sorry about your son. I pray that the surgeon is able to repair his shoulder so that there's no lasting problems and no pain. You talked about 'time' in one of your other posts -- 'time' and not wanting to know. Have they told you that you're eligible for hospice care?? I got involved with hospice when my Mom was sick more than 2 decades ago. After her final steps, I wanted to repay in some way the gifts that had been given to me so I worked for a year as a home health aide. I was the only full-time aide. I had 25 patients that I rotated through over a 2-week period. All but one were elderly. Most were cancer patients. Because of your work history, you know what a gift it is to work in hospice care ![]() Karen, I recognize the fear and the panic in your voice. Please try to get more of your family members and your local community involved -- your Mom, your son's father, your boyfriend, local church workers. Your son sounds like he'll grow into a fine young man. Caring, thoughtful, loving. You've done a fantastic job of raising him My son was 11 when my Mom (his grandmother) was preparing to take her next steps. A wonderful man, Rabbi Earl A. Grollman, helped me get my Mom moved from out-of-state (South Carolina) to hospice care in Massachusetts, He was on the Board of Directors of the hospice at the time. Rabbi Grollman is a writer and helper. He's a wonderful, caring man. He helps people deal with losses of every kind -- losses through divorce, death... It might help you and your son if you can get some of his books from your local library. I would not have been able to cope without his help. ((((((Karen)))))), a lot of the pain and turmoil that you feel now is because you're fighting. We can accomplish more when when we stop fighting and allow The Universe to enfold us and guide us and teach us and show us how to teach others. Death is not some great hulking monster waiting around the corner to devour us. It's only a letting go of the pain. We don't have to let go of the love. I pray for you, precious lady. I hope you find the strength to do what you need to do. I hope your family and friends come together to help you. BIG HUGS (and blessings for both you and your son, healing prayers for your son, and prayers for no pain for you, Karen). Barb ![]() |
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#6 | |||
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Hi Karen! I am fairly new here, I want to add my (((Hugs)))
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I Will Always Believe in Poems, Prayers And Promises Love, Desi . |
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#7 | |||
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Co-Administrator
Community Support Team
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Do you have any one coming in to assist you?
I know your son has been helping but it sounds like you need more help now esp since he is hurt too. Hospice or a county, state nurse or care person? I hope you have a case worker, adult friend or family member to help you plan and prepare all the paperwork and applications for assistance.
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Search the NeuroTalk forums - . |
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#8 | |||
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Junior Member
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Thank you ,InHisHands, You are his age, and with RSD I dont know how you do it .You have helped me so much everyone has. I dont want to fall anymore. I know I can fight but Im so tried and have no one here but you and everyone here. That helps alot knowing all of you are here thats why I come here and if I can help someone like everyone has helped me but you are wonderful Im 39 and alone really alone .Im happy one minute next Im not I know that depression Im just so tried but I think of and I keep going you can I can .I just want to go under my sheets and sleep but I cant I have to help him my son The mosy important love but Im so tried and hurt so bad its something everyday and during it alone with me in a chair and cast June 14 th we be 4 yrs maybe thats whaat is going on to and the pain in and out everyday Im tried my body I have no control of my insides anymore and have no adult to touch scream at hold talk in person no help in person and Full Body RSD on and on and on how long can it go ? its 12:00 calif. time we just got up But its not enough sleep because the pain I get my strenght from all of you and you are just wonderful I just want it to stop but I want everyone know I will be back and keep going and holding on to every word Im just so tired not even 100lbs my body cant eat because of another medical problem I just dont have it but Im trying. Thank InHisHands I love you girl,
Thank you everyone Karen
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Gentle Hugs Karen . |
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#9 | |||
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Junior Member
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Please read up and please eveyone and InHisHands please read up Im send eveyone hugs so many hugs
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Gentle Hugs Karen . |
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#10 | |||
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Junior Member
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Quote:
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Gentle Hugs Karen . |
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