Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-20-2014, 01:26 PM #1
stephie628 stephie628 is offline
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Join Date: Mar 2014
Location: MA
Posts: 12
10 yr Member
stephie628 stephie628 is offline
Junior Member
 
Join Date: Mar 2014
Location: MA
Posts: 12
10 yr Member
Confused please help! i have severe pain in my entire right arm & upper spine. something's wro

Hello, my name is stephanie, im 29 yrs old and im going thru alot. I'll try to make this brief & to the point. Started when i was 16 & i got hit by a car while walking across the st. I had a huge bruise on my left hip the size of a soft ball, my shoulder was injured & ny feet swelled fora few days & i couldn't walk. But i never got checked by a Dr. My injuries healed & i moved on w/my life. I would occasionally get lower back pain, but not bad. Also i have always been very active since a young age. Have had many jobs & loved life. However about 6/7 yrs ago, the pain started in my rt shoulder & my upper spine between my shoulders. Still, i managed a pretty good life & i could work w/out a problem. About 2 years ago tho, the pain started getting pretty bad after i startrd a new waitressing job, the place was new & VERY busy. I was working long hours, carrying very heavy trays, plates & glass ware. This is when.my symptoms got bad, very quickly. I ended up losing my job bc i couldn't tolerate the pain.
It started w/my right shoulder. Excruciating pain, it feels like im being stabbed with a knife, hot burning unbearable pain. No matter what position i am in, the pain doesn't go away. Its been constant for well over a year. Then my elbow,wrist & hand (all right side) were experiencing severe pain. I have been seeing doctors for years now, and all they said was golfers & tennis elbow & unstable wrist. I never immobilized my arm or was ever bedridden. My lifestyle did not change, yet my arm has considerable and very noticeable atrophy.

My right shoulder has significantly "dropped" and has lost a lot of muscle mass, aswell as my elbow and hand. The skin on my hand is SUPER sensitive, where i can't bear anything cold (water, ice, cold air etc.) Just the slightest touch is agonizing. I cry so much from the burning stabbing pains i get throught my entire arm from shoulder to my hand. My upper spine is so tight an painful, like it's being squeezed & twisted.

I get pains at the base of my skull (like a sharp ache almost, like its being stretched badly) i occasionally get electric sharp pains that feels like they're in my brain. I've also noticed my vision has been getting blurry, and i occasionally get twitches in my left eye lid, and i feel pressure when looking in certain directions. But not my rt. Eye. Im constantly dropping things, my balance is off, constable tripping. My grip stregnth is so weak, as well as my entire arm. (I have ti take breaks when.i AM able to do my hair, or housework. I am always tired. I have really bad insomnia & I'm lucky to sleep for a solid 1 or 2 hours b4 my pain wakes me as if im being stabbed!! My memory is getting pretty bad (I've always had a great memory) now, ill forget what im saying mid sentence. I'll get up 2 get a snack from the fridge, and end up in my pantry, forgetting what i was there 4.

Also, i dont have any noticeable inflammation, but i do have warmth and redness in my tender areas. Also, my upper spine gets SO HOT & sweaty. My skin is very dry now on my right arm.

I started PT today, very minimal bc i lost alot of ROM in my shoulder. Im now seeing a Physiotherapist (thankfully he is very kind, caring & understanding) hes giving me meds for the pain. He's assuming the atrophy is from disuse. Also, im a new patient to him. BUT, this is my dominant arm, no atrophy in my left arm & no dramatic lifestyle changes.

I know something is not right. I know my body. The fact i lay awake, crying & moaninh in excruciating pain, that is quickly and rapidly progressing. The atrophy came on rather quickly, within a few months. Im also very irritable & have anxiety now. Also, when im laying down, w/my arms resting on my belly, they go numb (pins & needles) within a minute. I also get muscle twitches in my right arm & left thigh & when im sitting in a chair, legs crossed, i have to keep uncrossing bc my legs go numb & hurt.

Ive noticed my speech is a little off & i sometimes struggle pronouncing words (never had this problem ever in my life). I've also noticed i choke more while drinking (like goes down the wrong "pipe" & occasionally have trouble swallowing) poor appetite. Just so many things. My quality of life totally sucks & i feel so alone. Like people think im exaggerating or im just lazy. I havent been diagnosed with anything. But i just feel like the docs don't listen to what im saying. They focus on 1 thing. I did my 1st PT 2day, an my whoke arm is SO sore, like I've lifted 500lb weights for 3 hours.

Im sorry for the long post. I'd truly appreciate ANY and ALL feedback. I feel so lost and alone & im so scared bc i kno something is not right. Not to mention the fact that my symptoms are rapidly progressing & my arm is rapidly deteriorating. Im startibg to feel the same shoulder pain in my left shoulder (not to bad yet). Please help and feel free to ask any questions! Thank u in advance.
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